We know its not something we knew it was not

After rounds speech decided that they did not need to watch her take something by mouth before they did a swallow study so we went ahead with just doing a swallow study. Jillian sat in a chair like contraption and i fed her. She sucked just fine like I thought she would and did not choke while she was eating, which she does does not do anyhow. They completed the test at that point and said she was fine and that she does not aspirate. I did not think she aspirated while eating, but when it comes back so it was frustrating that this test did not last long enough to see it come back and if she was aspirating on that. She has however the barium mixed milk has been a yo-yo in her system since the test. She has not puked any of it however she only got 15ml (1/2oz) of it. I know we needed to do that test to rule the swallowing out but it kinda feels like a waste and frustrating because they were trying to say that she defiantly does not aspirate without watching the time of concern for aspiration.
Genetics also came up today too. We met with a resident first (who was on rotation on this floor last week so we have seen him twice now in two different rolls) and her asked us what is new since the last time we met with genetics when we were inpatient. A couple of hours later a geneticist, the resident, and  someone else came into the room. They looked her over and said that she is cute and that in their line of work that is a good thing. They noted something with her ears and chin... not sure what. We talked a little bit of the possibility of a mitochondrial disorder. The only thing they can do for testing for that is blood work and urine. They can do a muscle biopsy but they don't like to do those on a 4 month old. They said for now we just need to focus on getting her food and that we would talk more later. They also said time would tell more about all of this...
So for now we sit again and wait for rounds to see what is next...
We have had some visitors today. One of our ministers came and visited us and my aunt and cousin. We were laughing when my aunt and cousin because my cousin is a frequent visitor to this floor of the the hospital and one of the nurses heard his voice and came in to see why he was here.