Showing posts with label allergies. Show all posts
Showing posts with label allergies. Show all posts

Friday, September 27, 2013

At little shattered glass and a little spilled milk

I will start this off by saying we are all ok. 

I came out of work on Thursday to a cracked windshield. Im not talking about a little crack, no, it looks like someone took one of those kids Spirographs to my window. It is an interesting looking crack... just not very good for driving. Especially not for driving with a 9mo old. Dan was close by so he came over and we moved Jilli's car seat to his Jeep while we looked at it. I called one window place in Elkhorn and left a message. A little while later Brent got there. We looked at it a little more and the boys decided that the crack was not all the way through so I drove Dan's Jeep home with Jilli and Dan drove my van. Today I spent the morning calling around to glass places. Most places have not called me back. The one place could not do it until at least Monday (even though they had the glass instock). Finally we found a place in Kenosha that will do it for $135 at 9am on Saturday. We just have to get the car there. The funniest thing about this whole thing (finding the bright spot) was that someone else was parked next to me at work. They had seen my windshield about an hour earlier when they arrived. They were surprised that I did not know my window looked like that because they figured I drove to work with my window like that... ummm no! 


Today while calling a ton of places I noticed Jillian's pump bag was wet. Sometimes it is a little damp because of the bag "sweating" because we put very cold milk in there, however I have never felt it this wet. I opened it up to find milk all over. The top had screwed on funny and was leaking! I took everything out of the bag and cleaned it up. I still need to wash the bag. I got one of her other pump bags (this is why we have more then one) and set her up again. The bag that got wet was the only one small enough for her to wear though so for today she has a leash that only goes so far... sorry babe!

In everything last night I forgot Jillian's cream for her yeast infection at work. Dan went and picked it up for me today! The rash is starting to look better. There is one spot on her leg that still looks pretty bad. She keeps trying to scratch it through her clothes and diaper. We have been trying to air it out some, however she hates not having a diaper on. She will even try to put a diaper on herself. Oh my sensory girl!

I feel like I have seen her grow so much in the last week! She has started trying to pull up. She has been talking more. She is doing things with more of a purpose. She is growing up so much. She is almost 9 1/2 months old. She is getting so big. She is crawling like crazy so her body is starting to shape like a moving kid. She is so smart!

This week she started crawling around the living room. Until now she has stayed on the rug in the middle of the room. Her exploring got her into some trouble. Brent broke a glass in the livingroom the other day and thought he got all of it. Well leave it to Jilli to find it. It was under her pack-n-play in the corner of the room. She got her hand under there and found it while I was vacuuming the room. I looked at her, shut off the vacuum and ran over to get it. By that point she was already putting it in her mouth. When she noticed I was coming she took it out of her mouth. Luckily she only got a tinny cut on her thumb. Brent cleaned it out (she did not even flinch when it was being cleaned). It is fine, but it scared us. I have been trying so hard to make the house safe for Jilli but I guess no matter how hard you try some things will still get past you. Oh the life of a family with a baby on the go!

Jillian has had a yucky cough again for over a week. I really dislike this cough! It is defiantly ones of those worse at night coughs that wakes you up. She is sleeping in her rocking chair right now (it has straps and such). It is helping her sleep better. I think for her the crib might not be the best thing for her to sleep in yet. I know, for most kids it is the best and safest place, however Jillian is seaming to need to be more upright and even with putting wedges in her crib, it is just not enough. She is sleeping a lot better, even with a cough, being more upright. Maybe crib sleeping will just have a wait a little while longer...

Today Jillian and I enjoyed watching a new Daniel Tiger. She loves that show! The theme song comes on and she gets so excited (well, she has a thing about theme songs, so loves How I Met Your Mother's and Big Bang's!) Today's show was about how it is ok to be different and it had a little girl on it that walked with braces and crutches. It was really cool! These are the messages that I want Jillian to learn, that being different is ok. I'm glad she likes a show that teaches good things and is not just a killer of brain cells. We typically only let her watch TV for medical stuff or if she is not feeling good, but this was a good exception and we were lucky enough that I was off today for the episode.

We also spent part of the day dealing with medical billing stuff. With the world of technology that we live in I would think that there would be less errors, however I guess when you have as many claims as we do in a year, there is bound to be problems.

Believe it or not, with all of this in the past couple of days, I'm still in a good mood. Stuff happens. Car windows brake. It stinks. Takes time and money, but Jilli and I were not hurt. Bills and spilled milk are inconveniences, but not that big. My devotional lately has talked a lot about relying on God for peace. He has been granting me peace. So you just do the next thing, cause what else are you going to do? You could be crabby and angry or just go with it. Today I have been wise enough to seek His peace in doing it all... hopefully I will be as wise tomorrow....

Friday, June 28, 2013

Cough, cough, cough



Jillian was up last night with an HORRID cough! It was a scary sound. It sounded like a croup cough. She had an erratic breathing pattern. I facetimed my mom to get her opinion. She all sat and watched her breath for a while. Over a half hour her cough started to get better and she fell asleep. We decided we would wait it out. She was up multiple times with little coughing fits but nothing like the first one. She stayed in bed until 10:45, but was up coughing multiple times.
During the day she was really sleepy but she only wanted to sleep on my chest. She had a few times that she liked to play but for the most part she just wanted to be held. I took her on a walk to get the mail and her nose and cough got a lot worse. I am wondering if this is caused by an allergy to something outside. It is also 10 days after her last shot. Every time 10 days after a shot she has a runny nose and other symptoms. I have spent the day cuddled up with my little cuddle bug.
Tonight we were all hanging out. Dan went down to check the basement with all the rain and came back up with a picture of a little friend he found in the basement. It was a spotted salamander. I went down and got him in a show box. We gave him one of the gecko's crickets and brought him outside. We hung out with him for awhile and then let him go in the wood pile. Dan hung out with Jillian while we looked at the salamander. We have been watching How I Met Your Mother tonight and just hanging out.

Tuesday, May 28, 2013

Run, Run, Run!

Friday:
It was our 4 year wedding anniversary! It is one of those things that feels like yesterday but forever ago. Brent took the day off of work to get the house ready for the party. He kept Jillian home with him and they spent the day running errands and cleaning. During the day Brent's grandparents came over to spend time with Jillian and help out at the house. After I got done with work my parents and Dan come over. Dan spent the night.

Saturday:
Brent woke me up with waffles! Yummy! Jillian decided to sleep in til 8am!!! She peed through her overnight diaper she slept so long :) We started cleaning up around the house and Brent and Dan started outside. In early afternoon Brendon, my parents and brother came over to work on the house. We ordered pizza for dinner and mom and I ran into Lake Geneva to pick it up and go to walmart. After dinner Brent's dad brought out things for the party. The boys had a bonfire and mom and I worked on putting away Jillian's laundry.
Jillian's allergies are really bothering her. In just running to walmart her eyes puffed up again. Poop baby. She has a cough, runny nose, and still has a little goo in her eyes.
In the morning she had a blow out diaper. One of those to her hair poops! 

Sunday:
Up and at it early! I went to put the news on while Jillian was sitting in her Super Seat. There were racing cars on instead of news so I started flipping channels and came across Curious George. Jillian about jumped out of her seat when she looked at the monkey. I figured I would let her watch it for a little while. We don't normally let Jillian watch TV but this was just too cute! As we were about to leave Jillian pooped again. I took all of her clothes off before I laid her down to avoid the poop leaking out when I laid her down. Thankfully this worked and I did not have to find new clothes.
We headed off to church and Jillian loved watching grandpa play guitar. After church Brent went with Jillian back to the house and my mom and I ran to the store to pick up some last minute things for the party. We got back the house and Brent's parent's, grandparents, brother and Dan were at the house getting things ready. My dad and brother joined us shortly after they got done at church.
The party started at 3 and people started arriving just before 3. Around 4pm it started to rain and most people moved into the house. This worked perfectly because around this time Brent came to get me. We had a problem... each time someone flushed the toilet, poop water flowed into the backyard! I was so grateful for the rain at that point because it got people out of the yard. The party went on like nothing was happening other then a little rain. We did not want to spoil the fun for everyone.
During the party my mom hung out with Jillian. I am not a fan of the game pass the baby. It is too easy for the tube to come undone and leak everywhere. Also, she is already fighting an ear infection, and allergies and the last thing she needs is to pick something else up.
Working to get anything in the line
When we were cleaning up from the party Brent went to give her meds in her tube. He started with a water flash like normal but he could not get the water to go in at all. He would push down on the syringe and water would fly out everywhere. I came over and gave it a try. We tried different syringes, temperatures of water, and all the other tips we have gotten from GI and nothing was working. I called Dan's mom to see if she had any ideas and she said we needed to get her seen. I called the hospital and they paged the GI fellow on call. They called me back and said we would need to come it to try to get it unclogged and if that did not work we would need to stay the night and wait for morning to get it changed out. We started packing our things for the hospital stay and to stay at my parents until we could use the bathrooms at our house again. The packing was more like throwing but my mom helped us get things together and we got out the door kid of quickly. We left the hospital with people still in our house and instructions with Dan of what needed to be done before he locked up.
When we got in the car my mom called my Aunt Sandi and told her we needed prayers that they would be able to unclog the tube. Part way to the hospital my gas light came on so we stopped in East Troy for gas. I told Brent to try it one more time and he pushed a little and it started to go. We were able to flush 10ml into the tube! Whatever had been clogging the tube was gone! Since we no longer needed to go to the hospital and we could not go home we headed to my parents. My dad, brother and Dan met us there and we all hung out for a little bit before going to bed.

Monday:
Helping make pancakes
We woke up and my dad was going to make us pancakes however he did not have enough eggs, flour or milk to do make them so my mom and I ran to walmart. We picked up the food and some bottles that have the same nipple shape as the passy she loves to see if she would drink those better. We came back and dad made us all pancakes. After breakfast we ran to Ann Taylor quick since they were having a big sale and I am working on building up a new wardrobe since my clothes are too big. I got into a size 4 pair of pants!!! We also hit Carters since they had up to 70% off! Jillian got a few new things in bigger sizes :)
We ran to Target to pick some times up quick. Mom and I were checking out the clearance and came across the base for Jillian's car seat on clearance. Someone had returned it from an online order and it was over 50% off. We had been looking for a base for Brent's car for a while but no one was selling them or they where really expensive. I was so excited!!!
The roommates! Dan is moving back in
We decided we would do dinner together as a family since my brother is leaving for New Hampshire for the Summer on Thursday and we are not all going to be together between now and then. My brother mean a lot to me. We have not really been the fighting siblings and have gotten along so well. He is an amazing brother. When our heat went out in January Seth came over and helped me with Jillian and dealing with repair guys. He is very protective of his big sister and niece and would do anything for us. We almost lost him this year. He got very sick in November and almost died. The doctors told us that if he had not gotten to a hospital when he did he would probably not be with us. We call him and Jillian our little miracles.
At night Brent was holding her and she pooped. He changed her quick and put her in pajamas. He picked her back up and they were playing again and she pooped a second large poop. Hopefully she is starting to get some out! We all thought it was funny though! We tried Jillian's new bottles. She still only took 1/2 of the water :( We will keep trying

Tuesday:
Brent, dad and  mom had to be at work. Jillian and I slept in a little. I gave her a water bottle with one of her new bottles and with a little coxing and work she took it all!
I called the pharmacy because her laxative is suppose to be a 30 day supply but I picked it up on the 13th and it ran out this morning. With the amount of measuring we do I knew we did not mess up that much. I called and they said that even-though the bottle said quantity of 30 2.5ml doses there was only 12.5 days worth in the bottle because they only put 12.5 days worth in the bottle. This is a problem on multiple levels. First, I now have to pay again to have it filled for the rest of the month. Second, my insurance only pays for 3 fills of the same prescription a year at a store. The rest we have to do mail order. This now counts as one of my fills and we dont see GI until the 7th to get a prescription to mail in that will still take a week or so to get filled after I mail it! GRRR!
I also called med supply. On the 1st of the month we got 30 bags for her pump. This is a 31 day month and the 1st of June falls on Saturday so I need more bags this week. I called and the lady asked why I would need more bags now since I ordered at the 1st of the month last time. I explained the math and she said I can only have 35 bags in 1 month and I can not order another months worth of bags until the next month. She said she could ship me the 5 bags left that
I am able to have this month and then next week I had to get a delivery of the 30 bags for next month! GRRR
When I left the room she was on her belly
This morning the guy came out to pump out our septic to see if it was just full. He pumped it out and said that the septic system had a problem and we would need to call someone else to fix it. We are now waiting for them to come out and hoping it is not a big costly problem.
This morning Jillian spent some time with her uncle Seth. He had to leave and said goodbye to her and she started uncontrollably screaming. She is going to miss him a lot!

Well, I'll keep you updated on the backyard poop situation, and the Jillian poop situation... and those silly bags!

Tuesday, May 21, 2013

Health update May 21st

Well we have been doing this NJ tube thing for a little over a month month now. Before the NJ she was on an NG for 6 weeks. So Jillian has been tube fed for 10 1/2 weeks now. For us it is feeling kind of normal. I was thinking the other day that it will almost be weird for us to have another child some day and for them to (hopefully) eat like a normal 5 month old. But that being said, even though the 2am food changes are hard I find that little tube to be such a blessing. At the rate she was loosing I could not imagine where we would be without its help, and to be completely honest if I lived somewhere other then here, I don't know that I would have a little girl to curl up on my lap. That is a hard thing to grasp sometimes. So no my baby does not eat like a normal baby but for her that tube is the best thing for her so I have come to have a form of respect for it. In fact if someone told me today that they where shutting the pump off and taking the tube out at this moment, I would fight them because I know we would go backwards (even though I doubt myself sometimes about making all the "right" choices).

Before I give Jillian's current numbers for things here is some math conversions:
1/2 oz= 15ml
1oz= 30ml
30ml/hr means that she is getting 1oz in an hour

 So here is an update of the different health areas of Jillian and how she is doing right now:

Nutrition:
She gets 38ml of 27 cal breast milk every hour. (Brest milk is fortified with Alimentum)
She is on the pump for 22 hours a day.
She gets 836ml of milk a day. That is 27.86oz.
Her pump is increased by 1ml/hr every week. So next week she will be running at a rate of 39ml/hr with a total of 936ml per day

Water:
Jillian is offered 10ml of water 3 times a day (30ml total)
She finishes one of the 10ml bottles about once a day (sometimes less, but rarely does she every finish more then 1 bottle a day)
The other bottles during the day she either completely refuses or takes somewhere between 1-5ml. Most days she gets somewhere between 10-15ml.
If she does take a bottle well it is normally one of the bottles that she gets that is accompanied by her anti-acid meds. We give her some water first and then give her the meds (that taste like cherry) and then get her to take the rest of the water. This method only works for about one of the two times a day she is given meds/water like this.
Her drinking out of a bottle has become a lot less coordinated. She use to eat beautifully 45ml at a time. Now she starts off a little uncoordinated, becomes a little coordinated sometimes and takes water or loses all coordination and does not get much in. Sometimes she will become a little coordinated and then lose all coordination. Water frequently flows back out her mouth while she drinks.
She does lick at the syringe that she gets her meds from but she does not have to suck them out and it is a different shape then a bottle nipple and a different texture.
I am not sure if she likes the taste of the water. I have  tried it room temp and cold that that does not seam to matter if she takes it or not. When she took milk by mouth it was room temp.
She is given water when she wakes up (with her med), around 7pm (when her pump has been off for an hour), and at bed time with her med

Reflux:
The only thing Jillian has to reflux is the little water she drinks. She does still choke on the water coming back up some days. 10ml is not much to be going in so it does not come back out like it use to.  She does still cry sometimes after taking water and has a hard time burping after drinking sometimes.

Poop:
Jillian is currently on laxatives everyday. She is currently pooping about 1 time a day and it leaks out of her diaper most days. The past 2 days she has had really bad gas again which she normally gets when there is poop "stuck" in there so I am waiting for an avalanche. She has been on laxatives daily since May 6th and we have yet to have a day that we are drowning in poop and she has not pooped more then 2 times in a day during this time period. Jillian went on the laxatives on the 6th because she was pooping blood and then went a few days without pooping.
Sometimes when Jillian poops she is obviously in pain before she poops and sometimes it is a lot work for her to poop. Sometimes the poop is looser and sometimes it is thick.

Pee:
This area seams to be working good! She pees multiple times a day. She hates a wet diaper though :)

Sleep:
Jillian sleeps from somewhere between 8-9pm to 6am. (She is oblivious to the 10pm and 2am food changes)
She sleeps in a Rock-N-Play
She sleeps swaddled so she can not get her tube
She naps off and on during the day when she pleases

Eyes/nose:
I believe Jillian is currently suffering from allergies. Her eyes are puffy and goopy. She is sneezing off and on and has a cough that can last for minutes at a time. She has been pulling at her one ear a lot and when she pulls at her ear she rips off her tape pulling on her bridle. She is also rubbing her eyes a lot and has cut around her eye twice now (baby finger nails are so hard to manage). Drinking water makes her cough worse. 

Developmentally:
Jillian has figured out how to get her passy and toys in her mouth most of the time when she wants to. She is not perfect at this yet, but working hard. She loves he passy!
She has started reaching for things
She lifts her head when she is on her belly
She will laugh sometimes (not very often, only happened a handful of times)
She likes to babble sometimes. She will go days at a time without babbling and then start back up again.
She loves toys that are part hard and part soft
She is not a fan of toys that are all hard because they are harder for her to shove in her face.
She loves blankets and likes to "yell" at them before she smashes them into her face.
She does not roll over from back to tummy or tummy to back.
She does kick her legs while she is on her belly and that moves her a little.
She will look at you sometimes when she calls her name and looks at noises sometimes.
She is happy when she is not in pain :)

So that is what is up with Jillian right now! Our next big dr. apt is June 7th.

Tuesday, May 14, 2013

4am... We are not friends!

Friday:
Hang on! Dad's driving :)
Jillian started off the morning with a medium size thick poop. We celebrate poop these days... and I celebrate it even more when someone else changes it, this time daddy got it :) We went to school and Jillian did not grace anyone else with more poop like I was hoping that she would. I was hoping maybe we had started the flow again.
When Jillian and I got home from work Dan was in the driveway working on fixing Brent's wheelbarrow. Brent got home shortly after and the boys decided that they needed another part to finish fixing it. I pumped and we decided we would just head to Lake Geneva for dinner.
We went to Taco Bell. I ran into a family that use to attend the daycare. We also had our first experience with kids asking loudly what is sticking out of Jillian's face. I don't mind when kids ask questions because they are truly trying to learn. One parent said the tube helps her breath (a great try from a parent, and an answer I find acceptable) and another parent tried to ignore their child however the child kept asking. I never did hear the parent answer their question. I would rather a parent give a good answer then say nothing at all so their child does not see it as something wrong or something to be afraid of. However at the same time I would rather someone say nothing then something dumb.
The boys then ran into Home Depot and Jillian and I hung out in the car while I reset her pump up. Before going on 24hr feeds I was terrified of setting up her pump anywhere but at home. Now I can change the bag in the Home Depot parking lot. We have come a long way. 

Saturday:
Flash back to collage. Dan spent the night here (our guest room is named "Dan's room"). Dan lived with us for a year  in collage and it felt like normal for the three of us to be eating breakfast together on a Saturday morning, now we just have a little addition.
The boys worked around the house on projects in the morning. They got the trim done in the kitchen! *Happy dance!* I got some cleaning done... not as much as I wanted but something is better then nothing right???
Dan headed out in the early afternoon and Jillian and I took a nap. Brent and I then decided that we had not been out to dinner the two of us in a while so we packed Jillian up and headed to Spreachers in Lake Geneva. It was kinda nice that the weather was not great because LG was not crowded and we were able to get a table right away. Now that it is getting nicer it is harder to get into places. It is one of the traps of living in a tourist town. That and I swear the prices at Walmart increase when the warm weather and money roll in. After dinner Brent was going to run to Walmart but instead we all hung out at home. I was really struggling with not getting the house cleaner during the day. I feel that it is my job to make sure that the house house is clean and presentable at all times. I want my home to be open to others but I struggle opening the door when people will trip over a  mess. I feel that is the house is not clean to my standards I am a failure. I know I have issues... As mother's day was approaching I was struggling with the house be a disaster. I don't give myself the credit that I am taking care of Jillian and all that entails, working full time, and we are in the middle of a lot of house projects right now. All I see is mess= my fault.  I told Brent that what I would love for mother's day is the kitchen cleaned up. So he put Jillian and I to bed and worked on the kitchen. I was SO grateful for that.
During the afternoon Jillian pooped once, about the size of a dollop of cool whip. Not all that impressive for her and for the lack of good poop lately. Dan called his mom (who is a nurse) and asked her opinion. I was able to talk to her for a little bit and that was so helpful! Jillian pooped again a little in the evening. We have also noticed that when she poops, if she has had water recently she pukes. If she has not had water to puke she burps or dry heaves.

Sunday:
Good Morning! Jillian had us up nice and early moaning and crying. Eventually we got her back to sleep about an hour before we needed to get up. We decided that we would try to catch a little more sleep too. The one thing neither of us realized was that neither of us had set an alarm. I woke up about 30minutes before we needed to leave. Amazingly we somehow got out the door on time.
We had a lovely breakfast with Brent's parent's at Cracker Barrel.  Jillian was sleepy but she was determined to stay awake and see everyone. For as sleepy as she was she did not fuss too much. Together we made Brent's mom a stone for her garden. Brent mixed the plaster and molded it, I painted it, and we put Jillian's footprint on it.
Next we met Seth at church. Jillian was not too thrilled during service and Brent spent most of the service in the hallway with her. After church we went to my parents so I could pump and then the 4 of us went to Target and Penara Bread. Their summer salad is back and that made me very happy! Then we headed back to my parents and my parents met us there (they were in Door County for the weekend). We then all headed to my grandparent's house for mother's day. Jillian was not feeling the best and was kind of cranky. She was just kind of off all day :(
We had no poop all day so I called the GI nurse line on the way home and left a message that we need a refill on laxatives and about the poop. Never thought i would be calling anyone and leaving a voice mail about poop!

Monday:
Good morning 4am! I am not an early morning person. Jillian was up crying and coughing and moaning. I have no idea what the problem was. I feel back asleep about a half hour before I needed to be up.
Jillian slept a lot at school and was kind of fussy. Her eyes look like allergy eyes right now so I am wondering if something environmental is going on now that it is finally warming up. She will be perfectly fine and then all of the sudden looks miserable. I am the same way with my allergies.
Brent got home from work before us so he made dinner and we all sat down to watch How I Met Your Mother. That is something that Brent and I set aside doing each week together. By the time the show was done my head hurt so bad from allergies I could not sit up anymore. Jillian and I went to bed around 8 after we turned her pump back on and Brent went to the grocery store.
Jillian took her water really well all day. She has not been drinking the bottle correctly and has been refusing to take more then 5ml. We can normally trick her into drinking by giving her the antacid med before the water (it tastes like cherry) but even then her eating is sloppy. All day she drank her bottles of water better then she has in a week. I have been concerned that she was starting to loose the ability to take the bottle correctly. This gave me a little hope. While her eating does not look nearly as good as when speech watched her eat a month ago, she is still able to get something in. Right now she is getting mad because she can not keep her passy in when she lays on her tummy. She wants to look around so bad but she wants the passy in too.

Tuesday: HAPPY 5 MONTHS!!!
Wow! It does not seam real that it has been five months already. It has been quite the journey so far but I am so blessed by this little girl. Happy 5 months baby girl!
Waiting for my shot
Good morning 4am... again! Have I mentioned yet that I am not an early morning person and that her pump gets refilled at 2am, and I pump from 2:10-2:30 and then have to get back to sleep so by 4am I have only been back to bed for a little over an hour? She was moaning and crying and flailing and coughing again. I got her to go back to sleep around 6, but only on me, so no sleep for mommy. We hung out in bed until 7 and then I needed to pump.
Jillian had an appointment for a weight check and shot a 9:30 so we left the house around 9 to get to East Troy. She is up to 14lb 9oz! (I wonder what it would be if she would poop right!) and the nurse gave her one shot and one vaccine by mouth. She said Jillian took the oral one better then she thinks anyone has. Jillian is use to only getting water and meds by mouth right now so for her it was not out of the ordinary for her to be gulping down a medication.
We then headed to Target. I figured I did not need to bring the whole diaper bag in for a quick trip, completely forgetting Jillian's pump was about to need to be refilled. We got to the middle of the store and she started beeping. I quick went and checked out and headed to the car to refill her. ops!
After we had been home a while I herd a noise in our driveway and looked out and the gas company repair truck was here. In January we had a problem where we had no heat because we had no gas coming into the house. After a day of searching for the problem, so money and a lot of repair men they figured out we had a mud wasp nest in the line that was now blocking the flow of gas. They took the nest out but told us more work needed to be done when it was warm out. So here today stands a repair guy that I had no idea was coming today and luckily was home for. He was able to do the work and it only is a little more money... but hopefully we should not have that problem again. When he was finishing up he asked about Jillian. I explained to him that currently she does not eat by mouth and she needs the tube to grow. He asked some good questions in really respectful ways.
While he was here Jillian pooped again. It was about a medium size and still thick. It took some pushing to come out and there was a good amount of gas first. Still waiting for GI to call back. Hard part is that her dr does not work  everyday.
Now we are curled up on the couch because she got fussy again. She is liking to be held on my left hip with her head just under my shoulder and her arms wrapped around me and a blanket on her back. It seams to be comfortable for her. Funny thing is that she has always liked to be held kind of like this. I remember the third night after she was born the only way she would sleep was like this. That night was a long night in the hospital since she wanted to be right by my c-section incision. 5 months later and she still loves that spot on me. So for right now I will curl up with her. I have to get some things done around the house, but I think they can wait a half hour more right...