The First Night

We have been home less then 24 hours now and so far it is going just fine. Last night she curled up on the couch with Brent for a while and I went to Walmart to get her meds and some food.  Funny how things expire when you are not home.
She was coughing a lot during the night. She seams to cough more when she is sleeping. She spends all of her day in an elevated position so that would not be a factor. 4am is seaming to be a bad time for her cough. She coughed a lot from 4-6 this morning. She and I ended up hanging out in bed most of the morning just chilling. It was so nice to not have people in bothering us all of the time. I'm not sure why but I seamed more annoyed by that this time around.
Her congestion seams to be off and on too. Sometimes her nose is a faucet and other times it is dry. When she woke up this morning her one eye was so full of gook she could not open it. I wiped it off with a wet wash cloth and she like that because she could hold the wash cloth.
I just ordered her a new backpack from Pumpkin Packs! They are feeding tube backpacks that should be a little easier to use then the some that came from our DME. I still think the backpack we currently have is meant for a different brand of pump because ours does not fit into it right. I am excited to get it in the mail. I feel a little bit like a five year old waiting for a toy to be shipped and it said on their website that it will be a 3 plus week wait to get it. Before Jillian went into the hospital my mom and I ordered a canopy for her car seat and that arrived while we were at CHW. She currently has a winter cover but this will be nice for when it rains and springtime. It is like a blanket that has Velcro on the top to attach it to the car seat handle. It will be nice to eventually take off the winter flower cover that she has.. it just has to warm up. It is April and we just had to have more propane delivered to our house because we need to have the heat on still. Wisconsin!
I think overall Jillian is happy to be home. She has loved standing in her jumper and she had the biggest smile when we put her in her rock-n-play last night. She has been enjoying being in her swing this morning and "talking" to her toys as she tries to eat them.
Well its diaper changing time.. still waiting for normal poop. We have had no poop again since Tuesday and she has been on a laxative since Monday...