The weekend

Friday night we were amazingly blessed by a family from church with food and other things to take care of us! We were brought to tears by there generosity just as we have been by so many amazing people. We are so blessed to have people around us that love us and Jillian. Just knowing people are praying is amazing. We have had people we barely know come up to us and tell us they are thinking about us and we have created many new relationships with people in our journey with Jillian. Looking back on the last few months we can see several places where God has placed just the right person in our life. Like just the other night Jillian needed to go on a new med that needed to go in her tube and our doctor was able to call our pharmacist and ask for a recommendation on a med. She has able to give him not only a professional reference but also a personal one because she has a kiddo with a tube too.
Friday night our friend Dan came over and spent the night so he could help us around the house on Saturday. We are so blessed by his friendship. He gave up his Saturday to come and help Brent with projects around the house. We are currently on working on getting our house ready to have a 25th anniversary party for my in-laws here. When we bought the house 8 months ago we knew it needed work but it has been a lot more work then anyone was expecting and with Jillian we have not been able to get done very much lately so now we are in a little bit of a rush to get things done. We are fortunate though that next weekend some of our friends are coming out to help us work on projects!
Saturday Jillian was very cabby. Between having an ear infection and not pooping since Tuesday she spent most of the day crying. She did poop in the afternoon but it was not a pleasant experience for anyone in the house. The boys vacated to a different floor from the smell. Honestly I am not sure if I have ever smelt anything that bad before!
We went out to dinner for Seth's birthday and then the girls went to Kohl's to get me some summer clothes. I am down 4 pants sizes since before I got pregnant meaning I did not have any clothes for warmer weather. I was excited to find some clothes that fit!
Today we got up and went to first service for Church and then a class for Jillian's baby blessing next weekend. We had pictures taken for the service however Jillian decided she was sleepy at picture time and was crying. She ended up getting her picture taken with her asleep with her passy in her mouth.They told us that we could send in 4 more pictures for the service and Brent and I were talking about how we have great pictures of her from the hospital last week. Tonight as I was sending the pictures it hit me that thinking that I have great pictures from the hospital is not a normal thought but to me was normal. Sometimes it hits me how different some parts of our lives are. Some of my best pictures of Jillian are in hospital rooms and for us that is reality.
Jillian has been making up on poop today. She has pooped 5 times. I left a message for GI tonight to see if they want her to stay on the laxative with all of the poop today.
She has also started refusing the water this weekend. She only gets 15ml at a time of water at time. Yesterday she refused her water and today she refused it until 8pm. On my message for GI I asked if they had any suggestions for the refusing of water.
Jillian's cold has been getting better this weekend although there have been a few times that she has choked on the mucus that she has choked the mucus that she coughed up. Her eyes are not as goopy today and her nose is not a faucet. I need to figure out a way to clean the bridal in her nose. It is green now from her cold but if you touch it she c
ries and they said it hurt her, but the thing is so nasty!
Well time to put her to bed. It is kinda nice her not having an exact bed time anymore. There are some advantages of being on a pump 24 hours a day :)