I just herd back from GI and they have decided to up the amount Jillian gets by tube. They were not able to confirm the schedule with the doctor today because she was gone but the nurse talked to nutrition and they think this new schedule is what the doctor is wanting. It does not currently up her by any ml a day but it gives it to her more slowly. The nurse is going to double check with the doctor tomorrow. This is her new schedule:
She use to take 5 bottles a day and was on the tube from 9-6. Trying to figure out right now the family adjustments to have her hooked up by 8 each night. I'm sure soon it will be second nature to us, but we have been kind of use to having a baby who will sleep anywhere so we just tote her with us. I guess we are just getting use to what it will be like later when she has a bed time.
I also got a call from home medical supply at 4:00 (just before I was going to call them) and they just realized then that I needed more supplies and that they could not get them to me today. I got it worked out so that I am able to have them delivered to my work tomorrow. Sometimes working with all the medical professionals is a full time job :)
I feel like these two pictures tell Jillian's feeding story right now:
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| Jillian's Easter breakfast |
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| Her first night with the pump on the pole |
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