HOME!

Jillian was up a few times last night whining and coughing. We got a lovely wake up call though at 5:50 this morning (she was up from 4-4:30). I woke up to Jillian out of her bouncer and in her crib, her pulse ox monitor on the bouncer and someone I had never met standing over my child. This is not the way any mom wants to wake up! The unknown person introduced themselves and told her she was there to draw blood... at 5:50 in the morning! I know they don't sleep at the hour however I had finally gotten my kid back to sleep and myself. After being poked Jillian decided it was time to be up for the day...
The first doctor came in and asked me what my goal was for going home. I said that I was not taking her home while her our plan for feeding her included something she was choking on without a plan to get the choking to stop. So it was decided that she would not get any milk mouth so she would not choke.
Rounds started and they decided we would try two 15ml water bottles again today. She also got another dose of laxative because she still is not pooping right. They briefly talked about switching her to Enifamil AR, but the dietitian said that was not a good idea. I have a milk allergy so I am dairy limited and Jillian is on Alumentim which is for kiddos with allergies so it has milk broken down differently. AR is milk based and they don't want to rock the boat and move to something that has more dairy in it just in case it is a problem. After round's Brent's mom came to visit Jillian and I for a little but. 
Case management came and visited us. They called our DME (direct medical supply) and had it arranged so we will get NJ supplies now. She also called our home pharmacy with our insurance company to let them know that Jillian grew (YEAH!) and her and her dose of antacid needed to change.
The dietitian came back and asked when and why we switched to 24cal milk. I told her it was switched when we were admitted and I have no idea why. She said our current amount of food per day is significantly more then when we came in and that is why we have been seeing the amazing weight gain (plus she is not letting any of it go!)
I then had the joy of getting all of our things into the car. It took me two trips without Jillian first. Then I came back up and signed the discharge papers. On our way out we had to stop back at the GI clinic to have Jillian  weighted on the same scale she was weighed on last Friday. Her weight was 13lb!!!!!!
Jillian's swabs came back negative for any nasty viral infections so she just has a run of the mill upper respiratory junk.
We now have follow ups to do! We see one of her pediatrician's partners this Friday to check on her upper respatory junk. We see her pediatrician next Wednesday for a weight check and follow up. We follow up with GI next Friday for a follow up and our genetics appointment was set up for June. This momma is going to be running :)
Tonight we have been trying to adjust to life with an attachment. I think this next 24 hours will be the hardest.