Up and Down

This week we bumped Jillian up to 615ml per day starting on Sunday (3/31) since her feeding "days" start at 6am one day and go until 6am the next. The added 15ml went into her feeding tube at night and she ran at 44ml/hr instead of 42. This changed showed very quickly to be difficult. On Monday morning Jillian woke up choking. Tuesday morning she woke up throwing her head back (she does this many mornings). Wednesday she screamed most of the day. The crying was so bad I had my mom come and picked her up from daycare (thankfully she was on spring break) and bring her home. Thursday morning I woke up and went down to our kitchen to get my breakfast and Jillian's meds. As I came back to our bedroom I watched Jillian start puking (while the pump was still running). So Thursday I put a call into nutrition. By Friday late morning I still have not herd back and I was getting antsy because we are suppose to up her intake by 15ml each Sunday and I was not sure that was a good idea so I call GI. Luckily they got back to me and they talked with nutrition. The nurse and nutrition decided that we should go back to the 600ml diet and run her pump at 42ml/hr again. They told me to call back Monday and check in with how the weekend went and at that point they would check with the doctor since she was not in on Friday. So far this weekend has been better. She still wakes up throwing her head back but we have not had puke right away either morning and there has not been a major choking fit when she woke up.
Last week she also took to puking after her 2pm bottle. Thankfully she did not continue that this weekend since we were at a wedding away from home with our close friends. She did do little choking spells during the weekend, but not any that sent all the adults in the room out of their chairs.
She has developed a small cough this weekend. It is a little better tonight so I am hoping that something was just bothering her yesterday and that she is not getting sick.
Well there is snoring coming from both sides of me right now and I am thinking I should join their noisy choir since I need to leave for work at 6:40am.