What a week

Ever had one of those weeks that you are glad is almost over? That would be this week.

Last week we got to be a part of my cousin Jessica's beautiful wedding. Jilli loved seeing all of the people and it was nice to see family. Welcome to the family Ryan!

A weekish ago I had anaphylactic reaction to latex. It landed my butt in the ER for several hours. I have not been in the hospital for asthma since a couple of months before my wedding (5 years ago) so I am not use to is anymore (there was a 6 year time frame where I frequented the hospital for asthma issues). I had never had a full anaphylactic reaction before. I am allergic to apples and it cause my throat/lips to tingle however it has never sent me to the ER. It has been a while since I have seen an ER move that fast. My respiratory rate was so low it was making things flash and beep. Within 15min of entering the ER I had an IV started, shot of epi, muscle relaxer and predisone in the IV, start of an hour long run of a run bag of IV fluids, and a neb treatment. Before I went into the ER I did a neb treatment and took 2 Benadryl. Within an hour and a half time frame I had 3 nebs. The doctor said when I arrived I was not moving air however after all of those drugs within a couple of hours I was able to function. I would bet that it I was not a moderate asthmatic that knew what they were doing they would have admitted me however they let me go home. I have been on nebs all week and predisone. Today I am starting to really start to be me again. It has made the week long.

Jilli has been taking nebs this week too. She had a broch on the 23rd. They say that recovery from those are quick however with Jillian it takes a long time to bounce back.

Tuesday I had a follow up with my doctor about my trip the the ER. We decided that it was a good idea that I now carry an epi pen and stay far away from latex (I really want fries and campfire sauce from Red Robbin right now but they have balloons there). After my appointment Jilli and I went and spent time with my grandparents. It was good to catch up with them. Tuesday night was spent trying to get my epi pen. Apparently our new insurance covers only a couple of dollars of the over $300 pen. I found a coupon online for $100 off however it was still a crazy price. I kind of needed to pick it up that night though because I was taking a bunch of 4K kids to an apple barn on Wednesday and wanted to be safe.

Wednesday we went to the apple barn. The parents of the kids in my class probably think I was crazy because I did not touch anything while I was there but the field trip went well. Before I left for the apple barn Jillian's pump decided that it did not want to work. It just kept erroring over and over. We had a problem with it last weekend with her pump turning off in the middle of the night for several hours so she missed several hours of feed. By mid day Wednesday I was ready for her pump to take a flight (this is the one that they switched out for a month ago and honestly I have disliked this new one for a while, it runs slow and the battery sucks and it does weird things) I called med supply as I left work and they said they could switch out the pump. I was on my way to Milwaukee to get one of Jillian's meds anyhow so we went to their main office. We were there for a while. Jilli and I then stopped at the zoo for about an hour to see the elephants, giraffes and to ride the train. We LOVE to go to the zoo and I love that we have a zoo pass and are able to just stop by for an hour and see a couple of things, ride the train and not feel bad about only being there for a short time. We then ran over to Children's and picked up her med. Then we went to the Mayfair Collection. They have a Carter's store. I was looking for a jean jacket for Jillian. We bought her a peach jean jacket on clearance a few weekends ago and she is in love with it. She LOVES jackets right now (almost as much as shoes) Carters had the same jacket in blue on clearance and the kenosha store was out of it. The one there had it in an 18mo so I picked it up however it is still way too big for her right now. Then we went to Mayfair and met Dan and Brent to make Build-a-Bears for Tubie Friends. Then we went to dinner at PF Changs (my meal sucked... don't get their Pad Thai!) Then we went home :)

Thursday night we had dinner with Bren't parents in Lake Geneva and then came home and watched the Packers kick butt!

We also got a call back from the nurse in charge of the aero digestive clinic on Wednesday. She gave us results back from her surgery:

ENT: There is no clef, just that weird thing where there does not look like there is muscle but there is. She said to follow up as needed.

Pulmonology: Her lungs have bacteria and such in her lungs that show that she is aspirating regularly on her own secretions (this is the same as her last bronch last Christmas) They said to stay on our normal follow-up schedule with them.

GI: THEY WANTED TO SEND US BACK TO FEEDING CLINIC. I will fully admit that there was NO nice word in my head when she said that. I then questioned this and kinda said no. Why would we go back to feeding clinic? She is not medically cleared to eat. You just told me that her lungs show chronic aspiration! The nurse said that she would talk to the speech path that works in feeding clinic and get back to me. She called back a little while later to say that the speech path said she does not belong in feeding clinic (THANK YOU!) She said the speech path said to send us back to Dr. Kahn (THANK YOU!) So the moral is, after me throwing a fit, we are going back to the GI dr that I like! Yeah! Sad news... we could not get back in until November.

Jillian's new pump is runs fast. She spent most of Thursday miserable. Her first pump ran fast and we could only get her as high as 58, her second pump ran slow and we got her up to 61. Her new pump is running about 7% faster then it should. We have bumped her back down to 58 and she is spending less time in pain. We are working with her dietitian to work on getting her to grow (her pants from last year are falling off of her)

So this is a catch up on this week :) the best part... Lots of cuddles from my little girl! I love jilli cuddles!!!!!!

Jilli and I at the reception

Jilli dancing with Jess

double nebs!

Jilli and daddy sitting at the top of the stairs

Jilli cuddles

Jilli taking her meds

On the train

She had such a big grin!

Waving with two hands

Jilli stuffing a bear at Build-A-Bear

Jilli took a picture of grandpa during dinner

I also have TONS of these photos on my phone

Jilli watching the Packers

This is a picture from her surgery. This is her throat. This picture is sideways. It shows the funny part if you know what you are looking at... if not... her is a picture of how just above the vocal box should not quite look

Swallow Studdy

This post has been sitting open in Firefox for a week with just a title and a blank body. I have stared at the big blank white box multiple times however unable to write a word. It is not that I did not have something to say, it is that emotionally I could not do it. So here I sit, a week later, making this big box a little less white.

Last Thursday Jillian had her second swallow study done up at Children's. We had not ask for a swallow study, the head of GI decided she needed one because he wants to move forward with feeding clinic. A swallow study looks to see if a person can safely swallow when given food. It is done with X-ray and watches to see if food goes down the esophagus or the trachea. Jillian has never had a problem with swallowing the first time something goes down. Her problem comes in when she refluxes her food back up; then she aspirates on it while food is trying to go up and down at the same time.
I am pretty positive with this study the head of GI's goal was to prove that she is safe to eat. Despite what multiple other professionals at Children's and Aurora has told him, I think he still does not get what is going on with Jillian. This study for Jillian proves nothing. It is is only a couple of minutes long and only looks at the initial swallow.
Last Wednesday night I was filled with anxiety about the swallow study because:
1. I was afraid (and still am) that despite that her issues are with refluxing foods, that from a clean swallow study he would say she is safe to eat and try to push us to feed her orally even though that is not what is best for her and will lead to pneumonia. Multiple other professionals agree that she is not safe to eat.
2. For a swallow study Jillian has to drink barium. While she is fine with drinking it, I was afraid of what it would do later. Her getting sick from aspiration is hard on everyone, especially her. We try our hardest to avoid her getting things in her mouth and to think about giving her something on purpose is hard to wrap my head around.

My mom went with me up to Children's for the test. We got in the room and started talking about the test with the speech path. I liked her a lot. She agreed with us that Jillian's medical history proves that there is some underlying medical issue going on and that it would be super helpful if we could figure out what that was. We talked about the aspiration and how it happens and she gave us the option to opt out of the swallow study. After some discussion we decided to do that study but to only do a very small amount (the same amount we give her orally each day for her medications). We decided to give it to her in a syringe so we knew exactly how much we were giving her. Currently the only way she is getting anything orally (her meds) is through a syringe. We decided that since all this test would look at was the first swallow, that is did not make sense to give her a lot to just make her aspirate when the camera was not on.
We got the barium in the syringe and started the test. The test last just over a minute. Jillian did not aspirate during the test but we did not figure she would.
The speech path said after the test that she has an immature sucking pattern but with her history she would be surprised if she did not. She agreed though that we should not be giving her anything but her medication by mouth. She said that with Jilli it is not safe. The speech path understood Jilli and her feeding concerns.
As much as I had a lot of anxiety going into this test, it did bring a little bit of peace about the upcoming feeding team evaluation. The speech path that did her swallow study is the same speech path that is on that team. Hopefully since she has already met with us and knows us and Jillian's story, I am hopeful that she will be an advocate with us for what is safest for Jillian. I know that everyone that works with Jilli wants to do the best thing, I just feel like some people define what is best for Jillian differently then others.

Since the test... Saturday morning Jillian woke up coughing and needing a neb. Saturday afternoon she was doing better. Sunday morning she woke up with a temp of 99.4 and needing a neb. We did nebs every 4 hours Sunday. By Monday her temp was down and we did a neb in the morning and then she was good. Tuesday morning she started off ok and then part was into the morning her teacher came to me and said that she was really rattly and asked if she could do a neb with her. We then did nebs every 4 hours the rest of the day. Yesterday she was rattly too and did nebs all day. You can feel one spot in her lungs that has a definite rattle to it. She has had a green runny nose off and on too, but honestly this is not too bad for her having taken something by mouth. We did not have to put her on antibiotics or admit her to the hospital. We did only give her a little over 2ml though and she let a good amount of that roll back out of her mouth. I know it is crazy that such a little amount could do so much but for Jilli that is just how it is. Could you imagine what this week would have been like if she had more?

Monday Jillian had her 18 month check up. Her check ups mainly consist of me filling her dr in on everything going on and what is happening with each of the specialist. She goes over the basic things too. She looked at Jillian's bottom and where her pee comes out is fusing again. We are going to put the cream on it again. We talked about Jillian's speech and gross motor delays. She has referred us to an independent therapy place in Elkhorn. We have her speech eval set up for Monday and are working on a PT eval. Her doctor did not like the amount that speech and PT are coming from birth to 3. Now we are trying to figure out all of the insurance stuff for having her in b to 3 and a private company. I feel like a total jerk if I were to pull her from b to 3 after just having them come out and re-eval her.

Things for Team Jilli are in full swing. This week at work we started a penny drive for Team Jilli. It is so cool to see the kids get so excited about helping other kids! Our Team Jilli goal this year is $1,500. 

This Monday night our friends Brain and Lauren from collage joined our dinner with Jaime and Jason and Dan. It was a really good night catching up with old friends. We were able to meet Brian and Lauren's little boy Joshua. Joshua and  Jillian just kept staring at each other. Jilli did a good job sharing her toys with him. It was such an encouraging night for us and we were so blessed to spend time with friends.

Through this long week I have been so grateful for some amazing people in our lives. For Jaime, my Aunt Sandi and my mom for talking to me and helping to ease some of my nerves before Jillian's test. I am so grateful for these three amazing women in my life. They are such a blessing to us. I am thankful for all the people who have prayed for us. As my Aunt Sandi put it "you are the people who go to your knees for us while we fight the battles and when we feel to weak to keep going." Your prayers have really been felt this week.

Seth and MiKaley came over for dinner. Jillian liked playing with them

Grandpa reading Jilli a book

She is wearing the same clothes she did last summer. She is between 9mo and 12mo in clothes

Playing with Potato Heads. We have some of the coolest Potato Head parts from Disney World

She LOVE Gears

Working on walking

Curled up with a blanket

The post op shoe is off my foot! My toe is still sore but doing much better!

Jillian's Breakfast... acid reflux meds!

Helping daddy fix a problem at work

My rock star tubie girl!

I love those sun glasses! They only stay on for a minute or two at a time but they are so cute!

Reading Doc Mcstuffins with Uncle Dan

Getting comfy while taking a neb!

Mothers Day Weekends 2014

Our mother's day weekend started on Friday after work. My gift from Jillian and Brent was flowers delivered to work, bagels from my favorite bagel store and family time at Timber Ridge Lodge at the Grand Geneva.
Brent's work had a deal were we could stay at Timber Ridge for less then a cheep hotel, and with staying at Timber Ridge we got to play in a waterpark.
We met there after work and checked it. We went to the BBQ restaurant at the hotel and Jillian was adorable making faces at everyone in the restaurant. We got ready and headed down to the pool. Jillian loved the pool. They have a nice kid area and she had a blast crawling around. She decided to see what would happen if she stuck her head in the pool with her mouth open... silly girl. This did not work well for her later when she started not feeling good from her split second time taking on water. We played hard in the water park, spending some time in the lazy river at the end. That night Jillian was a little crabby but she had also poked through a molar earlier in the day.
By 6am Saturday Jillian was coughing her horrible, awful, cough. That cough tells me instantly that some of that water made its way to her lungs. We started a neb right away. We got dressed and headed over to the main building of the Grand Geneva and grabbed coffee at their coffee shop. We then went back to the room, got our swim stuff on a headed back to the pool. Jillian was a little sleepy at first but then got excited again. She loved going down the kid slides and playing with the water jets. It was an amazing time and just what we needed as a family. We will defiantly go back sometime. It is close to our house making it easier to go with all of Jillian's stuff. The rooms are huge and have a full kitchen with a fridge and a blender. (we use a blender to make Jillian's formula). I suggest it to anyone with kids. 
We then headed back to our house and changed our clothes, grabbed a few things and hit the road for Kenosha. We met my mom at Penara for lunch. Then we headed over to Kohls. Brent needed shorts for the summer and I needed sandals. Amazingly we both found what we were looking for at one store! We then walked down to Tuesday Mornings and walked around. Lastly we stopped a shoe store. Jillian loved the wall of Crocs and took her own shoes off and showed me her feet because she wanted the Crocs on her feet. She is so silly. We tried a pair on but they dont start until a size 4/5 and that is really big for this tiny footed little girl. The one sales associate fell in love with Jillian and talked to us for a long time.
We then headed back to mom and dad's house to get Jillian another neb.
We decided to go out for mother's day with mom on Saturday night because we figured restaurants would be busy on Sunday. We went to Olive Garden and had a good time.
Sunday morning Dad and Brent had to be at church early because dad was playing and Brent had lights. Jilli got a bath in the morning and then after her bath she had a nose killing diaper. Mom, Seth, Jilli, and I went to the 10:30 service. We got to church and realized that Jillian's passy and clip was left at the house in one of her coughing fits. I had an extra passy in the diaper bag and gave it to her. While we were singing Jillian started coughing again and her passy flew out, hitting the floor. Even with multiple people so kindly looking for it we could not find it during the service. It was then 11:00 and she needed another neb so I took her out into the foyer and we did a neb. After the neb she was rather hyper so we stayed out in the foyer until after service was over. We went back in a found her passy on the floor in the row in front of us.
We then headed to Charcoal Grill for brunch with Brent's parents and brother. My cousin and her fiance we leaving the restaurant as we were headed in and we stopped and talked to them for a minute. Lunch was good. We saw Brandon for the first time since Christmas. Jillian was sleepy and needed a nap but was a really good.
We headed back to my parent's house so Jillian could take a nap. After her nap my dad got down my old Little Tikes ride on toy from the rafters. Jillian loved playing with it.
We then headed to my grandparents for dinner. Jillian showed off her new skill... steps! She started last Tuesday with taking two steps. Saturday she took a couple more and Sunday she took even more. She is at the stage were you stand her up someplace and she will take a few steps to someone once she gets her balance. She is so proud of herself. It has taken a lot of work to get her to this place and she has worked so hard. She will be taking off all on her own soon!
After we left my grandparent's Brent headed home and Mom, dad, seth, Jilli and I stopped over at my grandma's house. We visited for a little bit and then headed out. We were all a little hungry and wanted dessert but could not decide what we wanted. We stopped at Pick N Save and Dad, Seth and I went it. You know you are a true Wisconsiner when you stand and stair at a large case of cheese with a big smile on your face. We could not decide what we wanted for dessert so we got 4 little things and took them to the house and shared. We also bought some of that mozzarella and cherry tomatoes and Seth and I made our own little caprese snack.   Overall it was a great mothers day!
Jillian has continued to cough and struggle to breathe. She is slowly getting better over the weekend and I am very hopeful that we should only need nebs for a couple more days. This is just a reminder about how fast things can change with Jillian. She got less then a mouth full of water and it is causing a bunch of problems for her. A normal kid would not have struggled with it, but for Jilli its different.   

my flowers!

She is sooo cute in her swim suite!

Getting coffee

Daddy and Jilli in the water park. She just wanted in the water

I love her sunglasses!

Mother's day selfie

Chilling while taking a neb

Enjoying the little car

Dessert!

Today we see genetics! I'll update more later!

GI test results, easter, and Pulmonology

So I have not blogged in over 10 days and a ton has happened in those several days so be prepared for a long post!

GI test results:
Last Wednesday we got the test results back from her PH probe test.... drum roll please...... she has a lot of reflux! Who is surprised by that? Does that blow anyone away? She is outside of the normal limits for both kids and infants (infants have a higher upper limit because they reflux more). They called it extreme reflux. They said they could see on the test all the times she is gulping stuff down. Yup, she does that a lot.
There is not much we can do with these results though. She is already on the highest meds she can be on. She is not a good candidate at this time for a fundo because of her gastric emptying issues. We have to just keep doing what we are doing. Thankfully feeding into her intestines makes things a lot better because she is not refluxing food. We are blessed that it was figured so quickly (relatively in comparison to a lot of kids) that J feeds would change Jillian's life so much.

Easter:
Our Easter celebrations started off the Saturday before. Brent's parents go to Florida to visit his grandparents for Easter so we had dinner with them the Saturday before Easter. Jillian loved playing with her new Little Mermaid toy. She is such a princess girl! She also loved showing her grandparents her new tubie monkey. It was interesting because it was the first time we took him out in public. One young guy (our age) walked past and said to someone with him "whats wrong with the monkey?" From the time he noticed the monkey as he walked past us until he was too far away for me to hear, he was talking about her monkey and how bazaar it was. I would rather someone ask me about her monkey then to have to listen to them talk about it with that tone. I am sure this will happen again. Its ok. I hope that Jilli's monkey helps people to understand that sometimes people are different but they are still cute and fun just like her monkey.
On Good Friday Brent took a 1/2 day to come home and do Easter with us early and so that we could get packed and clean the house before going away for a few days. We let Jillian open her Easter gifts from us after her nap. It was a duplo year at our house. I found a Cinderella and a Jake and the Neverland Pirates set on an amazing sale before Easter. She loved them. The Jake set comes with a little row boat and she loved putting Cinderella and Jake in the boat.
Friday evening my Aunt Sandi, Uncle Tod, and Cheese came over. They brought Jillian a very special gift. When Cheese was little Grandpa Len made him a beautiful train table. Cheese brought it to Jillian this weekend so she can now play with it. We got to show Cheese and uncle Todd our house too. After they left we headed to dinner and then went grocery shopping.
Saturday we headed into Kenosha. We stopped at Starbucks for lunch, mom and I ran some errands and then we went back to the house and Sandi, Todd, Cheese and Grandpa Len came over to my parents to celebrate my brother's birthday. It was a nice night hanging out with everyone. It was funny. Jillian wanted to watch her DVD of Curious George. She kept bringing it to people hoping they would put it in. Eventually Aunt Sandi put it in for her and we all sat and watched George.
Sunday morning we all went to Church. I was a really good service. It was also great to see so much of my extended family. After church we headed to HuHot to celebrate Seth's 22nd birthday. We then went back to my parent's house and celebrated Easter the 5 of us. Jillian was funny opening her basket. She got so excited about each thing that she would completely forget that there were other things in the basket.
That night my mom's side of the family came over for dinner. Jillian loves sitting in her high chair and playing while others eat. Since all of us grandchildren are older the only one doing an egg hunt this year was Jillian. Instead of doing a normal egg hunt we gave each person in the family an egg and my cousin Jess took Jillian around to each person and she grabbed the egg from them. At first she was not sure but after a couple of people she thought it was a lot of fun and loved shaking the eggs (they had coins in them). She had a great time just sitting on the floor shaking her eggs and playing with the Sophia the First phone my Grammy got her.

Monday:
I had Monday off because Jillian had a doctor appointment and my mom is off this week because it is spring break. I spend Sunday night at my parents since my mom was going with us to Milwaukee anyhow. In the morning we got up and went to Party City to get decorations for my grandparent's 50th wedding anniversary party and for my brother's college graduation. We then stopped at Target to exchange something. Next we headed to Milwaukee to Betty Brinn Children's Museum. Jillian had never been to the children's museum before and she loved it! She was so silly going down the bumpy slides because she would get 1/2 way down, grab onto the sides and then flip over onto her belly. Cool idea for a "normal" kid, not the best idea for a kid with a feeding tube sticking out of said belly. Each time she did it I worried that she would pull her tube but thankfully it stayed in place. There are hundreds of everyday things that you need to think about differently when your child has a feeding tube. It is not that she can't do most things, it is just that a lot of them need to be done differently. I loved how they had a "garden" pit in the tot area that instead of having sand it had large plastic chips. It was great because she could not eat them. I would love to find those chips someplace because that would be great to make a Jillian safe "sand" box at home.
We played for a while and then we headed to lunch. Jillian was a goofy at lunch. She thought she was the funniest thing in the world. It was really cute!
We then headed over to Children's for her pulmology appointment. She has grown .1 inch (from 29.2 to 29.3in). She has been hanging out in that same .6inches since January. She is hanging out in the 9.5kg area still. My mom bought her 9mo shorts for Easter because she has thinned out around her middle a lot. She looks a lot chunkier because of her tube and belt but little misses' 12mo pants are falling off of her. Silly girl is not suppose to be going backwards in sizes!
The nurse came in and we updated her. For some reason Jillian's meds keep getting messed up in the computer system. I am really not sure how it happens so often. The nurse asked if she was developmentally on track and we said no for speech and gross motor. All of the other areas she is good. She asked about birth to 3 and I explained what is going on there and the nurse said she would help us get interventions for her if we need.
The doctor came in and we talked about all of the times that she has been sick since we were there last in January. She said that she wanted her on a stronger med. She is now on Advair two puffs twice a day. She also added Zyrtec because Jillian frequently has a runny nose and cough. The doctor wants to see if we can get the amount of drainage down so that hopefully there is less sinus drainage into her stomach.
I asked the doctor what she thought about food trials since they make her so sick. She really thought about it. She said that while she does not want to deny any child the opportunity to eat orally, that with Jillian, if she is going to eat by mouth it needs to be in a controlled setting with professionals watching her, not just us at home. I am really glad I got her opinion on this.I feel a little bit like GI blows off the lung part sometimes and are so focused on getting her to eat that they forget about everything that her eating does to her lungs. Yes I want my child to eat, but it needs
We then headed home from Children's and mom and I stopped at Target and Marshall's in Lake Geneva. We then headed over to Walgreens to pick up her new meds. With all of the medications added and changed over the past two months her monthly medication bill is now well over $200 a month after insurance! Little miss is a pricey little thing.
Mom then headed home and Jilli and I met up with Dan and Brent for dinner. It was Dan's first day of work at Bell Ambulance and we went out to celebrate!
Tuesday:
Tuesday Jillian pooped! She had not pooped since the Thursday before Good Friday! For a little girl on daily laxatives, that is a long time. It took a lot of laxatives to get that poop out! She gets really backed up like this every few months.
That day during lunch Brent went over to Ikea and got us two new love seats! Our double glider rocker in our living room was as old as my brother and had broken. We were in need of something new. I went on the Ikea website this weekend and they had love seats that turned into beds on clearance for less then we could have gotten something on Crag's list! I was so excited! Tuesday night Brent put one together before he left for Bible study and Dan put the second one together after he left. It was a little bit of an adventure because the second one was missing two of the holes to put on the legs...

Wednesday:
Have I mentioned lately that we have some amazing people in our lives? Well if not, we sure do! The past few weeks we have only been able to see Jaime and Jason a few times between Jillian being in the hospital and Jaime directing a musical, our lives have been full. Thankfully we were able to get together again for dinner the week. I love just hanging out with them. It is a good recharge.
They brought Jillian a gift... a circus tent! Seams they did some Ikea shopping too. She thought it was cool. She was very attached to mommy though. She is in a I must be near my mom stage. Like mom can't pee without me not being so happy stage. I love that she loves me so much and that I am a safety net... but girl sometimes mommy has to pee!


While Jillian might be delayed in speech and gross motor (no words and not walking yet at 16 1/2 months), she has amazing fine motor skills and her favorite things involve fine motor. She loves to color and insists on holding the crayon like we hold a pencil. She also loves to put coins in her piggy bank. Last night she sat down with the bag of coins that she got from her Easter eggs and put all of them in her piggy bank... one by one. She sat there for over a half hour. When she finished her bag from Easter she signed "all done" after being prompted. I then showed her the sign for "more" and she did it with her pointer fingers. I love that she is starting to do signs sometimes.

Happy Easter from mom and dad

She was so excited!

Taking a neb and playing with her new Duplos

Jilli, Cheese and the train table

Playing with her Duplos on the table

Jilli likes to sit in the rock and play for her nebs

Reading Daniel Tiger

We would build a tower, she would knock it down and would clap

That is Uncle Seth's old blanket

Curled up with Aunt Sandi watching Curious George

Playing with an ice pack in her Easter dress

Her Easter basket from grandma and grandpa

She got a hair brush

Reading a new Daniel Tiger book

Getting an egg out of Reed's hair

Getting an egg from Drew

Shaking her egg

Jilli and Jess

playing with her new phone

We were trying to get a family pic

This is how most of them turned out

That is the typical us!

With great grandma and grandpa

with grandma and grandpa

Playing with wood

Playing a drum

In the cool "wood" chips

She just wanted a hug

going down the slide

she liked the Tinker Toys

Crazy mirror

playing a guitar like grandpa

At the pretend take out window... this picture is rather ironic!

Rolling the giant die

Unwrapping her gift from grandma and grandpa Upton

trying to take her own temp

my mom got her some Sophia Luggage. Taking this kid anywhere is like packing a house

she decided that night she wanted to take a tent to bed

Sitting at church on Easter

Dinner with Dan and Brent (note... dan playing with the doll)

Jilli on our new couch

Putting her coins in her bank

Exploring her new tent

Uncle Jason in the tent

At dinner watching baby signs on grandma's phone

Choosing which one to open first