Saturday, April 20, 2013

frustrated

This morning brings the reminder to be kind to others even when you are overly sleepy and frustrated. I currently dont know what is going on here and that is annoying. It seams like each person we see tells us a different story of what is going on and what the plan is. I am not sure if they just dont know what is going on, but if that is the case we have an even bigger problem here. We were told last night that the pump would be running at 23 ml/hr and then they set it at 30ml/hr. They said we would give her a bottle when we turned off her pump during the 1 hours brakes. Then the pump was turned off and we did not get a bottle. I called and they said that she would get a bottle as the tube was starting back up. They just came in to give her a bottle (it is 9:00 and she has been off the tube since 7:50) but they did not hook her back up.
This time we are on the GI/pulmonology floor. The do not seam to be be very use to babies here. The one thing that was nice about the other floor we have spent time on was that all kids on the floor where under 2 so they had spaces for storing breast-milk that mom's could access and areas to make a bottle. On this floor we have to rely on the nurses for all of that and the urgency to eat at a specific time is different for an infant then an older child. I think that might be where some of my frustration is stemming from. Even being at a children's hospital you don't realize how different it is from an infant floor to an everyone floor until you make that transition. The staff has been having to figure out how to order labels for my breast milk and  they did not know how to fortify breast milk.
Jillian has developed a very runny nose while we have been here. Normally she sounds really congested but this is a lot more

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