Wednesday, July 31, 2013

Nuro!

Today we visited neurology. We got to see the Fellow first. I know its funny but sometimes I think it is sweet to see the med students and how hard they try.
They took weight with her clothes on and she was 19lb 6oz. We went into the room and weight for a long time. Good thing she is still easily entertained!
The Fellow came in and I gave her the entire Jillian heath history again. (Note to self: buy a tape recorder and tell the story to music.) He said that since Jillian comes to nicely from these spells and she does not shake at all or make any sounds that they think that it is not absent seizures! Plus her EEG looked good! He said they can not 100% rule it out because they did not catch her in one of these episodes during the EEG.
So what is it then? They think these absent spells are from reflux!
They think the reflux gets so bad it causes her to be absent. I now will take to the research about this and I can't wait to talk to GI about it on the 23rd! Now I am really wishing we could have gotten in sooner!
They said to call them back if these don't stop when she gets old, they get more frequent or we get worried.

In the afternoon we decided to get out of the yucky weather and hit up the mall. We went and looked at Janie and Jack to see if the dress I fell in love with is at a good price yet... sadly no. We went into William and Sonoma  to look at stuff to go with the sweet Zoku Jaime and Jason got me for my birthday! They had one of the accessory sets on clearance and they had an extra 25% off clearance! Score!
We stopped at Target on the way home. I needed to get something to organize all of Jillian's medical stuff. It no longer is contained in my night stand and I can not stand it all over the house any more! I bought something that I am hoping will work. I had a gift card from helping with a research study at Children's so I was able to pay out of pocket about 1/3 of the price. I love walking around Target! This Target in Milwaukee was nice too!

Today she has been teething a lot which equals to a lot of drool which equals random clear puke. It is lovely. I love when she pukes when she does not eat. She also likes to "eat" her spit up by chewing it once it comes up... yummy!
looking at fabrics for more pads for my tube

She did not cry for pain meds until 7ish tonight. She did great all day, but she let us know when she needed something :)

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