Tuesday, July 30, 2013

Meds

Jillian's new tube has a g port (going into the stomach) and the j port (goes into her small intestines). She gets all of her feeds into her j port. She also gets her laxatives into the j port. She also gets acid reflux meds daily and currently Tylenol. Both of those meds need to go into her stomach. Lucky for her they are both flavored and she loves them. She starts shaking when she sees the syringes full of meds (sad I know). They are her treat and she will stop crying and start smiling for them. 
Tonight I needed to play pharmacist and mix her acid reflux meds and I did not get it done before she went to bed (I was FaceTimeing with my parents in Kenosha and brother at NASA at the same time). I figured I would just put Jillian's acid reflux meds into her g port tonight (the advantage to having a GJ tube). Jillian woke up when I was starting to open her up the port and was in and out of sleep while I pushed the meds in and flushed it with water. Very shortly after finishing meds she started arching her back and moaning. She still is randomly opening her eyes and moaning. You can tell it is hurting her. With meds and water I put in less then 10ml in. So either she is refluxing a lot with a little (which she is know to do) or there is still milk sitting in there from her bottle around 7:30 (which is something we are looking into). Hmmm which is it? Not sure. 

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