Carly (her awesome dietitian!) called back today after we had her weight checked at the GI clinic yesterday after her nuro apt. She was 19lb 3oz without clothes on their scale (she has been weighed on that one a lot, we count it as her true weight).
Carly called today to say we don't have to fortify anymore! No more mixing milk! This is helpful since I am down to pumping 3/4 of her daily needs and the rest we are taking out of the freezer. We do have to remember to squeeze the bag every few hours so the breast milk does not separate.
She has not been her happy self today. I'm not sure what it up :( She woke up crying and has been fussy ever since. She has been throwing her head back a lot today :(
I have also spent most of the day figuring out insurance and medical bill stuff. Numbers is not my thing. There is a reason I teach little kids. I think I have some of it sorted out! Ahh that takes so much time and makes little sense sometimes!
I also spent a while trying to get her tube to stand right today. There was a lot of drainage that came out of it in the past 24 hours. More then she has had so far. Weird. I'll watch it.
I also read some info that came to me from the Oley Foundation. They help people with IV and feeding tubes for nutrition. They are a great resource! I am so grateful for Oley and Feeding Tube Awareness for everything they do for families like us!
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