Whirl wind!

I woke up Thursday morning to Brent making me chocolate chip pancakes that were shaped like Mickey!They where so yummy. We talked to a few people on the phone and finished packing up all of our stuff.
We took off for the zoo around 9. We stopped on the way to get gas and sunscreen (I forgot to pack that... ops!) As we were driving I kept getting a whiff of poop...
We got to the zoo around 10:30. We took Jillian out of her carseat to put her in the stroller and she had poop to her hair. After cleaning her up we sunscreened her up and went into the zoo. First we visited the penguins and then we went to the ape house. Jillian liked watching the monkeys jump around! Next we walked down to the animal hospital and looked around and showed Jillian that the animals do some crazy things too! We then took off to the reptile house. She loved the fish and snakes. She thought they where funny!

We went by the giraffes and Jillian took a nap while we ate our lunch of lunchables! We woke Jillian up and took her by the giraffes. They were all the way in the back of their cage and Jillian was not able to focus on them. We went to see the elephants and the big cats. She liked the jaguars because they were jumping all around. They liked looking at her too. We went by the elephants, had a fresh squeezed lemonade and then back by the giraffe and made her a mold-a-giraffe. We went over to the kangaroos and she was getting sleepy again. We stopped in the gift shop (that was too overpriced for me!) and then headed back to the car.
We stopped at Starbucks for my free birthday drink and Best Buy for a new phone charger. We then headed to the hospital. Our parking spot rated a 7 out of 10, lol! We checked in at the skywalk and they told us to go to admitting. They got us checked in and gave Jillian a handmade blanket! We then headed up to 4th floor day surgery.

They told us to have a seat and then her doctor came over all scrubbed up. She said she was glad she found us because a hospital policy changed and she might not be able to do the surgery but she would let us know. We were so confused about what was happening. Then the receptionist took us back to a room.
The doctor came in and said that in the past week the policy changed and they no longer place tubes in the surgical department but now in interventional radiology.  She said that if Jillian was in desperate need for the surgery they could do it right away but that Jillian fell into the gray zone. She said she was really sorry for the inconvenience and that she would go and work on getting us an appointment as soon as she could for IR to do the procedure. She came back in and said that they could not get us in for Friday and the soonest they could do was Monday so they where going to have to send us home. She said to wait there and she would check to see if they could get us meal tickets for our inconvenience. The doctor then came in again and asked when Jillian had eaten last (1:30 like they told us) and she said she decided that she was going to go ahead with the surgery! It was then a race to get all of the vitals and check in stuff done.
They then took us down to the 3rd floor general surgery because day surgery closes at 5. We went into a holding room and each of the doctors came in and talked to us. They gave her Versed and she became like a newborn again. It was kinda funny. Then the anesthesiologist  came in and carried her into the room. It is so hard watching your baby go through a set a double doors that you are not able to go into. We then headed into the waiting room.

After a while the GI doctor came in and asked to speak to us in a separate room. She that that the biopsy went fine and they got a lot of samples. She said the Jillian has a Hiatal Hernia. She said they went to place the tube but they could not find a good place because of her stomach and the surgeon did not feel it was safe to continue surgery so they stopped. She said we were being admitted and we would figure out what to do next since Jillian had no tube at all. We went back to the waiting room again.
A nurse came to get us. She said Jillian wanted us NOW and was screaming. We walked into the recovery room (Jillian was the only one) and the gave Jillian to me and she curled up on my shoulder and went to sleep. The anesthesiologist told us that she did great but she can pack a punch (I have been known to get violent going in and coming out of anesthetic). The surgeon then came by and said that he could not get a good enough view to continue, and that he felt like if he cut then it would not have been safe and he wanted to do the best thing for Jillian and did not want to put her in danger. We thanked him for looking out for her. We then talked about our options.  We can do the surgery a different way where surgeons place the tube with multiple incisions or there is the option of altering the anatomy of her stomach. We currently feel like we do not know enough about what is going on with Jillian to alter her in a way that cannot be undone.

They then got us a room on the 11th floor in the exact same room as last time. It was after 7pm at this point and we got some dinner. Jillian was going between sleepy and fussy because they pumped a lot of gas into her and it was coming out. We put Jillian to bed around 10 and by 11 she was up screaming again. The night was long with little sleep because she was up crying a lot.
This morning we have seen a few doctors. While we are here and she is tube and food free we are going to do the PH probe study. It is a 24hr long test and will tell us how much reflux she is having. To do this test they have taken her off all of her acid reflux meds. This was hard for her last night because she LOVES her pink medicine and I think she is more upset about no pink meds then not eating. The probe is to be place sometime today and she will have to be on IV fluid during that time.
Surgery is also going to come in and talk to us today and come up with a plan. I will update once we fingure out what is going on there.
We are also working on figuring out if Jillian currently has a ear infection. She has so much ear wax they cant see her ear drum so they are putting drops in to "eat" the wax so we can figure out what is going on. She is pulling at her ear a lot today.
She is still fussy today. She did spend a 1/2hr today playing with the new toy we got her for the hospital. She is very sleepy from last night and she still has gas.

We will see what today brings!