We celebrate Christmas with multiple people... we still are not done yet... we still have at least 3 more celebrations but these are are ones the centered around Christmas day.
We had a great Christmas. Low key and calm which I love. And we got to see many people we care about.
The kids still have some lingering symptoms from whatever virus they picked up at Disney. Jillis temp has gone up into the 99s a few times and Lydia's cough comes back when she is asleep but we are past the worst of it I think. The hard thing with both girls is that symptoms linger for a long time after the virus leaves because they do not clear out their lungs efficiently and they have chronic symptoms that add to it.
Jilli also got a face mask now for when we travel and Lydia's should come in the mail soon... we have to limit germ exposure!
Make A Wish called and it looks like her wish is all set to go. The monorail pool that she wished to swim in will be closed to be fixed a good portion of next year so she is bummed she will miss that part however the Disneyland Hotel will be amazing and she will love going to the parks!
I also have two phone meetings last week with NIH and gave them all of our history (for 4.5hrs...) and soon we should find out about our travel arrangements.
There are many parts with both of these that is really stretching me... when we go to Disney World I am a spreadsheet kind of girl with all the details all planned out but with both of these trips I have very little control. This is stretching for me... but good.
Lydia's stomach is also looking rougher again... but NIH said they will look at it and give recommendations as well. So we will see.
January is going to be busy at rmh/chw with dental, tube changes (hopefully), ent and special needs.
Jilli also lost her first tooth!!! Oh my! She is getting old!!!!!
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| This is what most of the photos of these 4 looks like lol |
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| Oliver and Lydia are getting close in size (he is less then a year old) |
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| And Jilli and Emerson are getting close is size (he is about to turn 3) |
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| Sleeping under the Christmas tree |
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| Watching the Santa Clause |
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| Jilli's gift to Lydia |
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| Coffee with the tree before the kids wake up |
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| Jilli trying to wake Lydia up |
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| Freezer chewyes... we go through SO SO many of those things at our house |
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| Hearing aids for her doll |
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| Jilli had a Polly Pocket in her stocking... this 90s mom approves lol |
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| These are sold at Walmart... and are one of two brands Jillian will use. Jillian still uses a passy under the guidance of her dentist and GI to help with reflux. Walmart is cleaning these out. If you happen to be in a Walmart and for the 6-18mo size on clearance we would LOVE them! |
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| What Lydia's tube is looking like :( |
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| I LOVE this picture! This reminds me of my childhood |
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| Christmas eve service has lots of people so we were careful |
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| I LOVED our Christmas eve servace this year... it was great! |
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| I wanted a good picture lol |
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| Grandma's rice pudding!!! |
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| going to sleep on Christmas eve |
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| This was the first year that Santa really meant anything to Jilli. We don't really talk about Santa much but this year Jilli kept asking if she was on the nice list |
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| Jilli got doll braces! |
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| You know you are a tubie when you get that smile for a new pump backpack |
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| Jilli got the Wellie Wisher Wellies... she has pretty much lived in them since she unwrapped them |
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| Her doll with the braces on |
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| Facetiming Uncle Seth |
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| my love language |
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| We got to my grandparents and found out that Jilli loaded her purse up with hair stuff lol |
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| I wore my Small World dress on Christmas day! |
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| Jilli dancing with her doll |
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