Some days I feel like writing, it helps me to relax. Some days it is a form of note keeping. Some days I think I have no idea what I will blog about next because there are no topics on my mind. Sometimes there are blog posts that are only written in my head but are never composed.
This year there has been more political posting then I ever have before... I am not a person who likes to argue politics. Remember I am a conflict avoidance person. It doesn't mean that I haven't had views on things in the past but I have felt this year that the political world and my world with raising two medically complex kids have collided so my nature wants to keep quite about things but the advocate in me knows to best help my kids I need to speak out about laws that would negatively effect them. I still worry every time I post something political. I still hold my breath. Now that maybe healthcare is going to take a pause (still not opposed to working together to fix healthcare...) I need to spend time looking into H.R.620 because I need to know more about it and take a position and make my position known to those who represent me because this is another law that effects my kids (from what I have read so far I don't like this bill but I like to have all the facts first) I think it will always make me antsy when I post anything political... its who I am but that doesn't mean I should not talk.
This blog this year had also been a lot about Jilli's medical crashes. So far this year we are at 3 of them and they have taken a substantial part of our year. From the two "smaller" ones on Febuary and September to the massive one in April, these medical crashes have been on our minds a lot this year.
Jilli started school this year and hopefully as time goes on I will write about that more. Today we learned about color mixing and spelling color words. Jilli this year has grown in her friendships with others and thinking about others. I love her thoughtful spirit. She still loves her princesses and Daniel Tiger and Peppa Pig and Super Girls but is also growing up some and loves Playmobil... her big girl toys. She is excited to learn how to read and add.
This year has seen Lydia grow a lot. At the start of the year she was just sitting but now she is into everything. She has several words and makes her wishes known. Her sleeping is still not much better... maybe next year will improve that some. She is still just as cuddly! She lights up when her favorite people are around and Nate is probably close to the top of that list. She has a adventure spirit and it is fun watching her learn. She has developed a love for Elmo and baby dolls. And she has started to pt you back when she gives you a hug.
This blog also went to Disney this year. My heart and mind are already itching to go back. We are always talking about when can we go back. Jilli has a running bucket list of things she wants to do at Disney. The planning of a Disney trip is a stress relief for me and being there is magic. I know not everyone gets that, and thats ok, but for me it is "my place." We don't currently have any plans set of our next trip... that funny money thing... so for now I will keep watching my Disney pod casts and following my Disney groups but hopefully soonish this blog will go back to Disney again.
This year we have spent a lot of time at RMH. A lot of my posts have included pictures from there. Over the past year RMH has really become our second home. The staff and volunteers have become our cheerleaders. I even had one of the post from this blog featured on their site which is a huge honor. We are in their promo video for the year which is so sweet because we are so thankful to be able to help share their story and mission. Many amazing memories this year have been there.
So this year will have more then 100 posts because the year is not over yet! But for some reason 100 felt significant this year.
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| October |
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