Jilli has not been feeling 100% since Friday. Her lungs are needing more nebs again and she is coughing. Today she left church around noon and fell asleep in the car. A little after 3 she was still napping on grandma and bumpa's couch. We were getting ready to leave. Mom looked at her leg and it looked like poop on her pants( Jillian's poop is yellow most days) She took her pants and diaper off and no poop. By this point I could smell it... It was bile. Jillian's med port popped open at some point during her nap and stomach bile and formula had been flowing onto her and the couch. We changed her and cleaned her up. And now to try to get bile and Elecare out of the couch!
Feeding tubes are getting a new connector that is slowing going to transition in over the next year. It's main goal is to make it less compatible with other medical tubing (iv, trach, catheter ect). One of the other main advantages for us is that the med port caps will now screw on hopefully causing less accidental openings. We are fortunate that at this point med ports popping open is rather rare for us however I remember how they were rather common when she first got her GJ tube.
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