Talk about the benefits you, your child, or loved one has received from tube feeding. What is he or she able to do? Celebrate their successes!
What is Jillian able to do? LIVE! She is able to get the nutrients she needs to sustain life. She is able to walk and talk because of her tube. She can play with other kids and have fun because of her tube.
I think today is best explained in pictures... Here is Jillian showing you the things she can do because of her tube!
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| Read a book |
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| Go shopping |
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| Pretend to be Minnie Mouse |
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| Visit family |
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| Smell the roses |
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| Make faces with Aunt Jaime |
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| Sit for the first time |
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| Watch TV with the boys |
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| Sleep during meals |
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| look this fashionable (not many people can pull off something sticking out of their nose that well!) |
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| Swinging |
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| Laughing at Uncle Jason |
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| Going to concerts in the park |
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| Lighting the world up with her smile |
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| Being on her hands and knees for the first time |
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| being allowed to just play with a spoon and that is it |
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| going for a run with mommy |
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| riding a space ship |
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| crawling for the first time |
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| seeing the princesses |
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| playing the iPad |
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| painting |
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| not having to take all of this by mouth |
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| getting her own special turkey dinner |
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| walking behind a toy for the first time |
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| playing princesses |
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| looking at fish |
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| dancing with daddy |
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| playing with babies |
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| getting to see her parents dress like this |
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| Charming the nurses at Children's |
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| playing doctor |
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| Playing with her Tubie Friend |
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| opening Easter gift |
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| going to Church |
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| Playing at Science and Industry |
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| Swimming at a hotel |
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| shopping with family |
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| Watching Uncle Seth graduate |
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| putting money in her piggy bank |
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| Getting to hang out with these cool people |
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| splashing in her pool |
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| going to the fair |
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| playing guitar |
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| playing at the park |
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| going to an observatory |
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| going to the zoo |
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| dancing |
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| being silly |
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| Taking daddy's slippers |
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| playing with friends |
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| popping bubbles |
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| Joining in the Children's Hospital walk |
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| Being a little mommy |
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| Thinking medicine is the best thing ever |
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| Helping make Tubie Friends |
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| Having her own Halloween candy |
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| Keeping hydrated while sick |
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| being a fashionesta |
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| Having her second birthday |
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| Playing musical instruments |
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| Cheering for the Packers |
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| Being the goofy girl she is! |
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