To us the smell of Elecare Jr. has become normal. Its not something that I want to spend time smelling or make a candle out of but just like people who work with smelly things, you get use to it.
Normally we also only smell it for short periods of time. We fill her bag quickly and then seal that bag making it so we don't smell it for long...
Unless....
Many ounces of it are pumped onto the floor!
I woke up at 2am to her pump beeping like normal to be refilled. I walked over to her bed and stepped into something wet. You guessed it... Elecare. Somehow her extension set for her G and J had come disconnected sometime between 10pm and 2am. There was formula all over her bed and the floor.
We cleaned her up, moved her into her old DayDreamer bed and got her hooked back up. She was mad because she wanted to be in her ComfyLift bed but she went back to sleep without too much of a fight thankfully.
Got up this morning and went to get her out of bed and the plastic part of her g tube extension was disconnected from the j part! But this time there was no mess... there should have been though. See the extension set pushes in and locks. When the extension goes in it opens up the valve that lets fluid flow both direction. The part that opens the valve was still connected, it was just the clear plastic tubing that connects the plastic part to the drainage bag that was disconnected.
I was then grateful that there was not a mess for the second time however I was also concerned. Something was not working correctly. I got a new extension set and a syringe and tried to vent it. Nothing came out! I then pushed a little water in. I then tried to get out the water that I just put in and could not. She needed a neb by this point so I gave her a neb and worked on getting myself ready. After her neb I opened the extension set again and was finally able to get a burp of air out. After a while of leaving the extension set draining into a shirt I finally started to see a little bit of stomach stuff come out. It was strange. We have never had that happen before. Thankfully we see GI on Friday and can talk to them about it. She has also been complaining some that her tube hurts so I think it is the perfect time for a GI visit.
 |
| Both of these are AMT G-Jet extension sets, can you spot which one is broken? |
In non Jilli news, our gecko Taco died yesterday. He fell about a month ago and broke his jaw. He has kinda been touch and go for the last month. He would look bad and not eat and then bounce back. He did this a few times in the past month. Yesterday I got home from work and he had died.
Brent and I got Taco shortly after we got married. We had him for 5 1/2 years. It will be strange for us to only have one gecko. Rest in peace Taco, we will miss you!
 |
| Our geckos, Taco and Chocolate Chip when we had then for about 6 months |
 |
| We found a pair of blue jeans this weekend that are long enough and are not too bad around the waist... 12mo Toys R Us brand apparently makes longer jeans. Without the belt they would fall off but who can resist that fun pink flower belt! (don't worry she did have socks and shoes before she left the house) |
One Wednesday a month there is not school for 4K students and teachers have staff meetings. Today was one of those days. Jillian was in her class while I was at meetings but then I was finishing some stuff up in my room and I did not want to have her nap at school because I did not have 2pm milk with us so we needed to leave before nap time is over to get her milk so Jilli hung out with in mommy's room for a little bit. She always thinks she is SO big!
 |
| She took my wireless keyboard and "used" it with the iPad. I think she was trying to make her own laptop |
 |
| I have a Frozen hopscotch rug that I bought for her but have had at school since I bought it and she found it today. She thought it was a blanket so she pretended to take a nap under it. She is so silly! |
No comments:
Post a Comment