As Jillian and I were walking out the door this morning she was dry heaving and then puked yellow again. She made some puking noises in the car too. She rode to the appointment in yellow stained clothes. But at least that gave me something to show them...
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| in the jumper that she rocks in |
Weight: 20lb 4.7oz
Height: 26.65in
The site:
The GI dr agreed that the site looked good. There is a little gradulation tissue that has formed (we noticed it Wednesday night) but she is not worried about it because there is so little. She said otherwise it looks really good. She said the site is a little red but that is a mix of healing and being in contact with tummy juice.
Dressing:
She looked at how we had it wrapped and said that she had a better way. She had this stuff called Sepro Net that is better then the Ace bandage going around her body. She said that a wrap can cause compression but that the new stuff holds everything in place without a squeeze. So far I really like it. They gave us two pieces to try and we are already down to one because she had a blow out poop this afternoon. We will probably look into getting more.
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| with SePro Net on |
Since Jillian has gained weight again she needs to go up on meds. Instead of taking 1.33ml of acid reflux meds a day she will now take 1.66ml. I'm sure she will be happy. The nurse was going to call in the order to our mail order pharmacy.
Yellow puke:
The dr said the yellow puke is stomach juices. She said that unless she is puking them every day we should not worry. She is currently puking them 2-3 days a week. I was liking this not puking thing. I'm not a big fan of yellow spew!
Pee:
We talked about the fact that Jillian does not pee during the 6 hours that she is off the tube. She said that is fine. I'll take her word on it.
Feeding Schedule:
For the next month Jillian will stay on the same feeding schedule she is on currently.
Testing/Emptying:
I brought up that one of the last times she was inpatient they talked about a test for delayed gastric emptying. She said that Jillian puking gastric juices and the fact that she pukes so long after she eats proves clinically that there is delayed gastric emptying. We are going to go ahead and do the test for numbers. We are going to talk about ways to help the emptying next month. One thing she is talking about is putting her on erythromycin (an antibiotic) long term because its side affect is speeding up gastric emptying. A part of me is nervous about putting her on an antibiotic long term. This part for me today was huge. It gave a little more of the puzzle and it is something I have suspected for a while but no one has confirmed. Gastric Emptying does not have a quick fix especially with kids like Jilli.
Tube Change:
We talked about what surgery had to say about the site. The dr. said she would put in an order for a tube change. I called IR after we left and they said that nothing in the notes said they could do the tube change this early post op so they needed to call the surgeon and double check before scheduling anything. I am waiting for a call back.I want to try to schedule the tube change and gastric emptying test for the same day since they are both done in radiology.
"Blank" Time:
I completely forgot to ask about this today!I left a message for the nurse asking her about it along with asking for more of the netting. I'm not sure what they are going to say. My guess is that we will just wait for them to hopefully get better... They are not there unless she eats or is refluxing a lot.
Tastes:
Jillian is going to get to start "tasting" baby food. When I say taste I mean an candy button sized amount of food a day. It is not for caloric value or nutrition, it is just for Jillian to begin to know what other things taste like so if one day she can eat she is know what food other then milk tastes like. I'm excited she gets to taste but a part of me is worried. With all of my food allergies, introducing foods to Jilli might be interesting. I guess she really wont be getting much at all at this point so I should not worry... right? I'm still not sure how to start this tasting thing...
I think that is most of the appointment. Today I needed to run to work and get the several hundred dollars of medical supplies I forgot there... ops! Also after the appointment we walked the mall and went to Buy Buy Baby to exchange the sun shade we bought Monday for one that actually worked. I am liking the new one better already and I think Jillian's eyes are too!
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| I have ALL the toys! |
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