Croup Update

Jillian taking a neb and watching Daniel Tiger

I took Jillian to the dr this afternoon for her followup for croup. First he looked at the report from the walk-in clinic. He said the radiologist's report from the chest x-ray was that the lungs looked the broniolitus or the start of pneumonia but that the neck x-ray looked clear. (the dr there said she noticed narrowing of the throat on the x-ray even though the radiologist did not). He listened to her lungs and said that they sounded good and that we could stop neb treatments. He looked in her ears and had to dig wax out (go figure) and that the one ear looked infected. We decided to just watch it to see if it gets worse. He looked in her mouth and said it does not look like she is currently popping any teeth. He said that if her ear seamed worse to call and that he was the one on call this weekend.
The appointment went relatively smooth. He and I don't always see eye to eye on things, but he is the only ped in the office that works on Fridays and since Jillian has a track record of needing to be seen on Fridays we end up seeing him every so often.
After the appointment we went to Target. I looked at Jillian's passy this morning and there was black gunk in-between the handle and the plastic part. It was quite gross and I'm not sure where it came from so I sanitized it and it was still there. The passy part also filled up with water while cleaning it so I think there was a hole in it somewhere so it found it's new home... the trash can! I then searched the house for the spare passy and I did not find it anywhere. Searched high and low. I'm not sure where it went... I had a substitute passy that neither of us really likes but it worked as a place holder. It was probably time for the next size passy anyhow.  

sporting her feeding pump backpack

Jillian's new pump has not learned that I'm boss yet. I'm not sure if we have not figured it out right yet or what. It has woken me up every night since we switched to it with some kind of error that is magically "fixed" by me just hitting run twice. It is not even at the same time of night. It also likes to say that a feeding is done after 3.5 hours when the pump is set for 52ml/hr and a volume of 208ml. That would mean 4 hours of food is in there. On top of it sometimes there is food left in the bag (sometimes as much as 50ml) and other times the bag is empty. We have not changed our measuring methods since switching to the new pump so we know it is the correct amount of food in the bag. I am giving it this weekend to figure it's self out or I'm calling med supply on Monday. I love how little the pump is. Jillian can wear the backpack and she looks so proud. It can be tipped to so when Jillian manages to get her hands on the pump bag it is not as big of a deal. But this accuracy thing is making me second guess it. We will see.
I am also trying to see if we can get Jillian to not poop an explosion every time she poops. If she gets less then 2ml of lactulose a day she does not poop, however with 2ml it is coming out like its a volcano and up her back and on her clothes. I am trying for the weekend doing 1.5ml twice a day to see if that evens things out. We will see. It is the Jilli balance!
Jillian is also working hard to figure out how to crawl. She can scoot on her butt reaching for toys. This does not get her anywhere quickly but she does move. Watch out world! It think it is only a matter of time before she figures out how to take off. I think I will be spending some time on Saturday baby proofing the house and when I am in Milwaukee next week for one of her appointments I think I will be stopping at the mega Babies R Us to pick up a few baby gates. The house will now look more like she owns the place :)

seams she likes her new passy enough to fall asleep on a monkey!