Wednesday, August 21, 2013

weekend fun and surgery follow-up

Friday night was kinda a chill night at home. We just hung out together. Saturday morning we got up and Brent got an email for a sale on jeans at Old Navy and I was in need of some. We quick got ready and headed to the store. After we came home and went over to our neighbor's party. Saturday/Sunday morning night Brent picked Dan up once he got back from his mission trip in Honduras. Sunday we went to Church and got to celebrate my cousin getting baptized. We then grabbed lunch quick, met with our awesome insurance guy and went to Carters. My mom and I ran to Target and Brent got corn. We had a yummy corn dinner (ok there was other foods too). We then headed home.
Friday Jillian almost flipped herself out of her rock-n-play so we decided it was time to move her out of it. Saturday morning we stopped at Bed, Bath and Beyond and bought an adult wedge pillow to put under her bed. Monday a bought a crib wedge to put at the foot of the bed because she was slidding down so much. It is helping but has not fixed the problem. Still thinking on that one...
Monday morning we went to the daycare to teach her teachers how to use her new pump. We figured out that when you turn off an Infinity pump and turn it back on it does not restart the feed. Once I figured this out and fixed it, the pump does not error at me in the middle of the night. The little quarks.
Yup, I eat giraffe

Monday afternoon we had a visit with the surgeon who placed her tube. She weighed 20lb 3oz with clothes and wet diaper. The med student then came in and looked at her site. The said out way of securing the tube was creative but works well. The surgeon then came in. He looked at it and said it was beautiful and that he was turning her tube care back over to GI. He said that she could switch over to a button style tube (less bulky) in two weeks. I was excited ny that because it is sooner then i thought it would happen! He said we did not need to see him again unless we decided to do the fundo someday. 
I did notice a poster in the room that advertised that they switched over to AMT buttons. AMT just came out with a cool new GJ button and from what I have read people are really liking it. Maybe they will have it and Jillian can try it out. 
Saturday afternoon I got a super sweet letter in the mail. It has been a while since I have gotten hand written mail land it was kinda fun! And it was so kind. It made my heart smile. 
Jillian is glad to have her uncle Dan home. She likes to smile at him. 
Monday night we had dinner with our gang:) It makes Jillian so happy to be around so many people that love her. While we are I let her play with a baby spoon. Even though she does not eat, I still want her to experience what it is.
For SPOON!
Sunday we I was blessed by talking to someone at church who has been so encouraging to me. I have been able to bouncy things off of her about feeding therapy and she is such a blessing to us. God uses twist and turn circumstances to bless His name and help us. Sometimes it is just crazy how it all works together. 
Well Jillian is sleeping and I need to also. School is starting soon so this is my busy time. Brent has a crazy project at work and is working a lot of hours.
Chilling in the stroller in Lake Geneva

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