Today we have been able to space out nebs! She does not start wheezing until 4ish hr after a neb. Tonight we were able to space out her neb treatments by 5.5 hr! Finally getting someplace! I am so grateful.
Last night I realized that if we needed to do a neb every 4hr during the weekend we were going to run out of nebs before the dr office opens Monday. I however did not figure this out until after the office closed for the day. I had to call and have a dr paged. I got the dr I was not looking forward to talking to. I was hoping for a quick answer and they were sending it to the pharmacy... Instead we got into a disagreement about the use of a nebulizer. It was super frustrating, but I got my way.
I am hoping we have finally made the turn. Hurray.
We have spent some time with my brother the past few days. This week last year we were starting a crazy journey with him. I had been having contractions for a few weeks at this time last year. Seth had what we thought was a stiff shoulder. Little did we know within a few days he would be fighting for his life in the icu. There was a time no one was sure he would make it. It has been a long journey and he still has almost daily pain but he is alive. He and jilli have something special planed for them.
Here are some pictures of her taking nebs this week:
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