babable babable babable

Jillibean is back to herself. The other night she sorted everything on the bottom shelf of the bookshelf for me. She would take something off, study it and then put it in a pile. I am not sure what her piles were sorted by but it was super cute!

Today I took her to the dr office for a recheck for the pneumonia. Her pule ox was 99 and her lungs sounded clean. She loves to help them listen to her lungs by trying to hold the stethoscope, lol. I also mentioned to the NP that there are days that Jillian barely pees all day. She asked some questions about it. There seams to be nothing off about her those days other then her not peeing. The NP said to keep track of it but that it did not really match up with anything so she is not too worried. When we were leaving my not friend from last week was faxing something by the front desk. I was really hoping to not get into a disagreement, but he did not even seam to recognize her... that's better then a fight!


I realized yesterday that I have not done a general update about Jillian's development in a while so here is one:

Gross motor:

• She is crawling around with increasing speed. Just this week she has started to venture out of the rug in the living room and crawl around the main floor of the house.
• She pulls up on things including the couch and her toy bins. 
• She will stand up behind her new walker toy, however she drops to her knees if she wants to move it forward 

Fine motor:

• She can pick up tiny things (sometimes things so small I did not realize they were there)
• She like putting things in something else. She had fun earlier this week putting our Tupperware containers together. 
• She loves to see how things work. She is always exploring something

Language:

• She babbles a lot! She has started repeating sounds that we make. She has not started using any words to represent something yet, but she will say momma and daddy when she babbles.
• Sometimes when we say "bye bye" to someone she will wave and say "bye bye bye bye bye." Its super cute!
• When she is mad she will yell "MOM!"   

Health:

• There is still some question if she is hearing lower tones, sometimes the boys still like to play the game "can Jilli hear this?"
• She is still completely tube fed
• She eats 15ml of milk by bottle once daily. She has problems with reflux after and stops talking for a while some nights after she is done.

Prayer requests:

• We are fighting for insurance coverage for her feeding pump right now. Please pray for this to get calmer! 
• For guidance for the future. We have a few little diagnoses but not an overarching. This is still a question in our minds and knowing the whole picture might help us to help her better. 

Today is Brent's 25th birthday! Happy birthday Hon!  In honor of that here is a picture collage of Brent and Jillian: