Sunday, November 24, 2013

It all just wears her out!

So I have questioned for many months why Jillian seams to get sick on Fridays. It has always been a mystery to me. Most hospitalizations have started on a Friday. We ended up seeing the alternate ped more then I would like because he was the only one in on Fridays for a long time. Then at 3am on Saturday it hit me, the week is too much. The running of the week, being in day care for 10+ hours a day 4 days a week, and getting stuff done at night gets to her. I think it is just a lot for her to handle and might be why she seams to crash hard once the weekend hits. Its not that we do anything crazy on weeknights. We try to keep it more low key.

This week was a little more crazy because we went to work 5 days. We were only there about 2 hours Monday morning, but then we had to run to Childrens, run to Kenosha, and run to Lake Geneva. She did not have a break day at home this week. 
This weekend she has crashed hard again. Around 2:30am Saturday we woke up to the horrible cough... the one that means puke is most likely around the corner. As I turned the light on it started to come. I grabbed her out of her rock-n-play and held her over the wood floor as she puked/retched/gagged/choked for 5-10minutes. Then she cried for a while. I turned on Jake and the Neverland Pirates on Netflix and about 1/2 way though the episode she fell back to sleep. I was up for a few more hours listening to her breathe and cough. In the morning the cough continued and she puked again. She screamed off and on during the day and was not acting like herself. By the evening she was doing a little bit better and not crying.

This morning she woke up around 6 coughing again. By 6:30 we were doing a neb because she could not stop coughing. Around 7ish she was puking mucus and stomach bile all over the place. We were grabbing whatever we could to try to catch it. We gave her a bath after she was done to help clean her up.
We went to Church and she was calmer and quieter then normal. She sat and played nicely. We have debated off and on over the last year bringing her into the Church nursery but that is hard when she is puking and such. I would not want to have them have to deal with that.
After church we went for lunch and she whined off and on through it. We stopped at Target and she was just dazed. She sat funny in the cart and looked that the ceiling most of the time. Not like her at all.

We headed back to my parents to put our stuff in our car and take off but by the time we got back to the house she was having to work at breathing so we gave her a neb. Once the neb ended we could not get her to stop screaming. No matter who held her or what we did. She did not want her stuffed animals, she did not want mommy, she did not want passy. It was a mind numbing top of the lungs scream for over a half hour. At that point we decided we needed to get her seen by a doctor. Something obviously was not right. This is not our happy go lucky little girl that you can poke an IV into and then she will smile at you after you are done.

We took her to the walk-in in Kenosha. We got our favorite nurse practitioner again (the one we visited when she had pneumonia). She said she read what has gone on since we were there last and then had us fill her in on what is going on now. We filled her in and she looked worried. She checked Jillian from head to toe. She looked in her ears and other then a little wax they looked good. She looked in her mouth and her throat looked good. She listened to her lungs and for just having a neb 2 hours earlier they sounded good. Then she touched Jilli's tummy and it became as hard as a rock and she started to scream. After a few minutes her tummy softened again and she calmed.
The doctor said that she thinks that even though she is pooping that her intestines are not moving well right now and it is making her poor little tummy hurt. She said she thinks she is puking because there is no where for the normal stomach secretions to go. She said to give her extra laxatives tonight to try to get her intestines moving and call GI tomorrow to see their thoughts.
Once we came home we gave her the extra meds. She has already had one blow out diaper. She has still had a few times of screaming, however at this moment she is sitting nicely and playing. She even just tried eating a piece of string....
Hopefully adding just a little more laxative will help her. It is hard because you can tell at times she is just in so much pain. This behavior is not like her. Yesterday we were trying to get stuff done around the house to start to get ready for her party in a few weeks. She cried so much we barely got anything done.

The one hard variable that is now going into this too is that last night was her last night of 1/2 breast milk 1/2 Elecare. The milk is almost gone. We are keeping the last small vials for her to drink (she prefers the taste) and those will be used up soon too. There is a little bit of breast milk left in the freezer at work that I have to bring home tomorrow but I think it is less then 10oz. One of the advantages that breast milk has over formula is that it is a natural laxative. It has always been my fear that formula would cause her intestines to move slower and then the day that she is to switch over her intestines decided to press on the breaks. But, there is nothing I can do. There is next to no breast milk left and once it is gone it is gone. She could not be on it forever anyhow so at some point we were going to have to deal with this.  Jillian got almost 11.5 months of breast milk, from my original goal of 6 weeks, I am amazed. It was a lot of hard work, loss sleep, worry and time away from her, but I think it helped her fight. Pumping and breast feeding are not easy, and I'm not sure if I will be able to provide my next kid someday with as much milk as I did for Jillian but at least I was able to give it to her.
Well I am warn out. It may only be 7pm but today it feels more like 11pm so I'm going to go put a few things away and then hope Jillian wants to go to bed early and that her body feels like sleeping tonight. I can hope right?

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