Brown and Pink Polka Dots : Start of June

We had a really nice weekend at RMH. Saturday morning we hung out and played. Saturday evening Total Mechanical (a sponsor of RMH) invited Nate's family, Caroline's family and our family to a Brewers game. We had a great time! We were in a box which was perfect for the kids with their temperature regulation issues. They also had dinner for us. The Brewers sent up bags with neck pillows, and a puzzle for the kids. It was a great time hanging out with friends.

Sunday morning we went to church and then headed back to RMH and hung out with Nate's family. It was a relaxing day.

Monday Jilli had ENT. Jilli has been struggling with hearing. This has been off and on since she was born. The problem is that sometimes her hearing test catches it and other times it does not. Her MRI showed signs of frequent fluid in her ear. This is likely what the problem is, that she frequently has fluid in there that is not clearing. It is not always getting infected but is impacting her hearing. The NP came in first and asked why we were there and I explained everything and said that even if her ears are not always infected her hearing is being impacted at times and we need a plan. She looked in her ears and said they were fine. Then the doctor walked in (who we have seen before) and said she couldn't see the ear drum through all the wax. She cleaned the wax out of the one ear and said that there was a puss sack on the ear drum. The other ear she cleaned out but still couldn't get a good look at the ear drum. She asked if I was ok with ear tubes, I said yes, we need to do something. She also put Jilli on an antibiotic to try to help with the infection. Jilli never even complained about her ears so I wonder how often they are infected and we are missing it! I told the dr that I would check to see if anyone else wanted in the surgery as well. Jilli has been in the OR 7 times already. We try to keep that as low as possible so when we can we try to get other dr in the OR at the same time. Jilli normally has an EGD once a year so the ENT sent her a message to see if she wanted to do one of those at the same time. The ENT is a good team player and I appreciate that. We are still waiting to hear if anyone else will be joining in the OR. Special Needs spent everyone on her team a message letting them know so hopefully they get back to us soon because we need to get the surgery scheduled. Monday night we headed back home.

Tuesday Jilli had OT. Her OT did some cross stitch with her and she loved it. It is good for had strength. We ran to Target to pick up a couple of things and then headed home. A friend from MOPs brought over dinner for us. Brent came home from work early because his stomach hurt. He ended up napping on the couch which is not like him at all.

Yesterday I got my tooth fixed. The day before we left for RMH I dislocated my jaw and it came down wrong and broke the filling out of my tooth. Thankfully the dentist was able to fix it yesterday. I really love my new dentist! Yesterday you could tell Jilli didn't feel great... the whining, oh the whining! By the time Brent got done with work this mom was exhausted! We went to Qdoba for dinner and then ran a couple of errands. It was nice to just be out of the house without medical things. Today we ran to Kohls (we are having family pics and Lydia's one year pics done this weekend) and now we are home.

So right now we are just waiting for a surgery date. We are also celebrating Lydia's birthday this weekend. Now that it is finally getting nice out we are hoping to start on some house projects too. There is always lots to do, so I am enjoying this moment of blogging while Lydia naps in my arms