Wednesday Update

This morning we started Jillian's neb at 6:15 because she was needing it. As I tried to take it off of her she woke up. She wanted to stay in her bed though and watch Mickey while curling up with her blanket.

She hung out on the couch until around 11:15 this morning and was just chill. She got up for a little bit at 11:15 and then went back to resting. When she got up she took her baby's clothes, listened to her heart and looked in her mouth and ears. That would be Jillian's world.

I took her to the doctor this afternoon. Her lungs were sounding good when we were there but she was still in the 4hr mark for her neb so her lungs were full of meds still.
Her doctor decided to send in a script for steroids but we are only going to give them to her if she is doing worse tomorrow then she is today. She got a dose of a steroids yesterday in the ER and she was just on steroids back in December. We try to really watch how much steroids she gets because it can mess with other things. We are hoping to not have to give them to her.
Her doctor said she needs to stay out of day care until Monday. Her doctor said normally she would have Jillian come back on Monday but she said to keep her out of the doctors office unless she gets sicker because there are so many germs there.
We are back home now and she is watching Disney Sing-Along-Songs Circle of Life. We have watched Me-Kee many times this week (Disney Sing-Along-Songs Disneyland). She is coloring a picture of Doc McStuffins. She is alternating between coloring and laying down since we got home. Hopeful that since she is coloring this afternoon that maybe she is turning the corner... I can hope right...

I was laughing at the dr appointment. I got my hair cut on Saturday and Jillian's doctor noticed. I just laughed... my kid's doctor should not see me enough to notice that I got my hair cut. I really like Jillian's doctor and she has been great for Jillian and really helpful, but it just made me laugh. I was reading a blog post this week from someone and they were talking about how you start to see therapists and doctors more then your friends that you had before having a child with special needs. How therapists and doctors start to know you better then other people. This is so true! Its not that we are not still close to some people but I really do see doctors and therapists more then most of my friends. I had not really thought about that until I read it and for that I am even more grateful for all of the amazing people that work with Jillian.