My goal is to make this make sense... however I have gotten around 2 hours of sleep in the past 24 hours so please bear with me...
We had Jaime and Jason over for dinner last night and all was well. Brent was sore because he fell down our stairs going to our garage on Sunday night. Jillian and I curled up in bed to watch a movie around 9:00pm. We fell asleep cuddling around 9:30 (it has been a really long time since we had done that) and Brent moved her to her own bed a little before 10pm because she needed to get hooked up to her pump and drainage bag. Around 10:30 I sat straight up in bed to the deepest sounding cough I think I have ever heard. I was seriously confused by what it was when I first woke up. It woke Jillian up too but then she seamed fine so I tried to go back to sleep. Just as I fell back to sleep the cough started again. I could then hear her wheezing across the room. Wheeze=neb time. As I am doing that Brent comes up and gets in bed. His pain had continued to get worse as the night went on and he was now writhing in pain on our bed. I asked him if he needed to be seen and he said he would be fine.
She continued to cough off and on. 2am came like normal, and the pump errored at 2:30.
By 6am she was breathing for crap again and really working at it. She coughed a few times and you could hear her wheezing intermittently. We decided Brent would stay home with her in the morning and as soon as 4K was done I would come home and try to get her into the nurse practitioner.
Around 8am, I had Brent check her pulse ox... 86! Crap! I had him call her doctors office to see if they could see her then or what they wanted us to do. They said she needed to go to the ER.
Brent took her up to Children's. They spot checked her pulse ox and it was better. They did a chest x-ray and so far that is clean (it typically takes a few days for something to show up on them after she vomits). They diagnosed her with an upper respiratory infection and croup. They gave her steroids.
It is now just before 4pm. She has been napping since noon. Very odd for her, especially lately. The drive home from Children's was mainly spent me listening to her wheeze. The wheeze comes and goes. She is using her stomach muscles to help her breath.
We will see what tomorrow brings! I have been saying for a couple of weeks that I could tell that things were starting to decline again. She is down to pooping twice a week, her urine output has been really low for a few weeks, her endurance has been lower (a two year old that will sit on the couch for severs hours at a time not doing anything), and she has been telling she has a boo-boo and pointing to her lower stomach. There has not been much we could do though, because until today she was not bad enough anyone would do anything. It is so hard to watch your child's body start to crash and not be able to do anything until the crash happens. Thankfully, croup is not as bad as many of the things she has had. She has had croup multiple times before. Still really hopeful that she does not end up with pneumonia.
While the treatment for the croup will not help any of the other things she has been struggling with right now, sometimes after multiple systems fall apart, she bounces back a little bit for a while and things level out again at her normal for a bit. I can be optimistic right? We will see...
Big thank you to Brent and my mom today! Thank you to Brent for taking care for Jillian this morning and doing a lot of the things that I normally do. Thank you to my mom for talking to me while I drove to the hospital. Sometimes the drive to Children's feels like forever when you have a sick kid.
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