Long day in the ER

So I posted yesterday about Jillian vomiting. Last night she slept like normal. She woke up this morning with an almost dry diaper and a deep cough. I sent an email to genetics to get their opinion. 

As I got to work I heard Jillian poop. I brought her in and changed her. It was green liquid. 

GI called back and said they wanted her to see her ped so they could see if she was dehydrated. I called her ped and the nurse said she needed to talk to the dr and would get back to us about seeing her. A while later GI called back and asked if we got her into her ped. I filled them in about what was going on there and they said to take her to the Children's ER because they wanted her to get IVs per the plan for when Jillian is ill. 

I was teaching so I sent Brent a text and he came and got Jillian and took her to children's. They checked, saw the dr and then they sent her for a chest x ray. 

Her weight was 10.1kg (not an accurate weight, she is not peeing and constipated) 

Her pulse ox was 96

Her chest x ray showed no pneumonia (we heard her aspirating while vomiting last night) but they said it is rather early for that to show up on an x ray. Her cough tells me some ended up in her lungs.  

Later in the afternoon they decided to run blood work. That came back fine. 

They decided to discharge her. We asked them what the plan was since they had done nothing for any of the symptoms that brought us here and since they had not given her extra fluids ie the reason we were there. 

The resident then went and talked to the attending. The attending came in and said that she was not dehydrated according to her blood test (she had just come off her tube feeding and when she is sick she dehydrates once she is off). She said we could give her pedialite in addition to formula. (Ie, she was not really getting Jillian's GI stuff). She said GI wanted to have her start a med for the blood in her stomach (they told me that on the phone in the morning)

I realized we were not getting anywhere so we agreed to sign discharge papers.

Since we got home she pooped green and it was the consistency of pudding. 

She is very uncoordinated tonight and falling a lot. She is still coughing, gagging and choking. 

Something is not right with my kid. Her GI system is not working right from top to bottom causing problems with other body systems. Thankfully we see her dietion tomorrow and we see the airo digestive clinc on Tuesday. We need a plan for when her body shuts down like this. This is not normal. This is not typical kid. I think that is part of he hard thing when we take her to the ER. She is so far out of the norm they are not sure what to do. 

So I guess we wait and see. They told us at discharge that if she did not have 3 wet diapers a day to bring her back to the ER or if her tummy is hard (you know, the reasons we brought her)

I'm trying not to be too frustrated and annoyed and remind myself everything happens for a reason. I'm hoping now that she has pooped that everything starts clearing up. Here is to hoping!