Today I had a todo list. Jilli and I got home from work at 12:30. Jilli fell asleep in the car on the way home so I put her right to bed. I ate some lunch and puttered on some stuff. I fell asleep on the couch. I woke up to her pump going off. Her pump was being a pain today!
She woke up to me filling her pump and we went down and cuddled on the couch. I turned her off at her done time. I flushed her with water and then we went up and got the mail.
We came back in the house and jilli went in her little house and played with her phone while I opened the mail. While I was reading a letter from children's jilli started coughing and gagging. Sometimes she does this with her own body secreations. She stopped so I went back to reading. I put the letter on the fridge and came back into the living room to more gagging and choking and then I noticed she vomited clear.
I went over and picked her up. She started gagging. I had her stick out her tongue to see if she had anything in her mouth and there was nothing. She then she started gagging a lot. I bent her over the wood floor and she puked more clear liquid all over the floor, rug and herself. I cleaned her up and the floor. She wanted to help by playing in it. She then played for a few minutes. Then it started again and she bent herself over and puked. She sat back up and went to play.
She then started having her absent spells. You say her name and try to get her attention and she just keep stairing straight ahead. Even Daniel a Tiger had a hard time getting her attention. Eventually she would come out of it and respond. These episodes kept happening every few minutes. Inbetween then she would keep playing like normal. She was also swallowing a lot and drooling all over. I hooked up her g drainage bag to help her with all this saliva.
I called the GI nurse line but they did not call me back before they closed for the day...
By 5:15 she was warn out and we curled up and watched movies. She and I cuddled the rest of the night. She kept having issues with extra saliva and was swallowing. As the night went on the absent spells became less frequent.
In her drainage bag is flecks of blood. We have been seeing one or two flecks of blood in her bag for a few nights now however ist has only been a couple of flecks. Tonight there are more flecks. It is not like an active wet bleed but there is flecks of blood in each clump of fluid that comes out of her g line.
She also has not pooped since either Thursday or Friday (I can't remember which)
Something is not right in her GI track. This is not a virus or bug. She has no temp and has played like normal multiple times since getting sick. This is her GI system not working. We will see what they say when they call in the morning. Our goal right now is to have a normal night with no vomit. We have a plan if that changes. Right now I am thankful for g tube drainage bags to relieve some of her discomfort.
Poor girl!
The red/brown is blood. There are many clips like that.
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