Speech: this is still a GI problem. She said to keep working with our speech path that she sees now. She said to call if we have any questions. She was really nice and this was all I was expecting from her
Pulmonology: the yuckyness has moved from her left lung to the right and the middle. She said it has hit the point that all she can do is cough it out. I am grateful that someone in pulmonology finely heard the rattle. She is going to check with Jillian's normal pulmonologist to see if she wants to do any tests. I liked her a lot.
ENT: we had an ent and ent fellow that worked together. I liked them a lot. They did a couple of things:
1. Referral to immunology to figure out why Jillian can't handle immunizations/gets sick all the time. I have to call tomorrow to make that appointment.
2. They want to do a test to look more in depth of why she aspirates. This test has to be done in the OR. The test is scheduled for sometime next Tuesday. They will call me with the time. They are going to see if pulmonology wants to add any tests since she is in the OR anyhow.
GI: we got to see my "favorite" GI doctor. He was not even going to come in the room however we asked another doctor a GI question and they went and got him. He said if no one else in this clinic wants to see us again that he will see us back in feeding clinic. I am just pretending this part of the visit did not exist because everyone else was wonderful and he makes me mad.
So the plan is to see what comes out of the test next week and go from there. Stay tuned the rest of this week as we see audiology tomorrow and Friday Jillian is sedated for an MRI and tube change out. It has been a crazy week in our house with her sick, and this next week looks to be crazy with figuring out how we can best help her. Nothing like giving your kid anesthesia twice in one week to send a mom's head into overdrive.
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