The Doctor, The weekend, the bath

Sorry I'm a little behind on here... it has been a busy few days!

Thursday:
Thursday morning stated out with puke all over the kitchen floor. She had her morning bottle upstairs with Brent and then I brought her downstairs to put her in her carseat and she puked everywhere. We cleaned it up and off she went to daycare. At night I had a bad headache that made me kind of useless. Brent gave her a bath and surprisingly she did not cry. She did not look happy but she did not cry :)

Friday:
In the morning we went to work until 11:30 and then sped off to Children's for her 12:45 GI appointment. It started off with the first person taking her weight. She was up to 13lb 12oz! The 20th percentile!!! She is also 24.06inches long. Then the dietician came in.She said that she did not have a lot to do this time because Jillian was just inpatient and she had a nutrition work up done then. She said that next month she would do another nutrition assessment. She said that the main reason she came in was to see Jillian. She has a student with and she said she told her student that she was lucky because she was going to meet the cutest baby. Jillian followed suit and showed them the cutest baby as she flirted with them and gave such big smiles. The nurse then came in and talked to us for a minute and then the doctor came in. She said that she was happy with Jillian's weight gain. We talked about the water and the puking/choking with it. She said to move down to 10ml of water each time. She brought up that again that she is not aspirating while drinking, which I'm grateful for but it is so frustrating because that test did not tell anyone that she is not aspirating on her reflux but the notes from the test seam to indicate there is no aspiration ever and I have not been convinced of that yet because no one has watched that yet. The doctor then said that we are going to spend the next month putting weight on her and next month we will talk about more tests. She indicated maybe scheduling the PH test next time and the nurse referenced maybe doing an endoscopy at the same time as the PH test. The doctor also referenced the possibility of surgeries.  One they referenced was a Nissen Fundoplication (more info about that http://www.feedingtubeawareness.com/Nissen-Fundoplication.html). They said they will determine based on test results on that but if they need to do surgery they would like her to weigh a little bit more and that is why we are waiting a month. The doctor also said that she would like Jillian to be off of the tube a little bit during the day and the they would give us a new schedule. The doctor then left and the nurse came in and shortly after nutrition came in again. They asked why we switched back to 24cal milk and I said I did not know and she said that we are going back to 27cal. To have Jillian off for part of the day to be able to get her enough calories we would need to be giving her a large fluid intake that was not necessary. Her new schedule is running 22hours a day at 35ml. She is off of her tube from 6 to 8pm each night. During this time we are to give her a bottle to see if she keeps it down better when she is not on the pump. After we talked about nutrition we talked about random things like buying clothes and such. I then asked if they had a good way of keeping the bridle clean. They said they would go find the person in-charge of bridle and then once we talked to her we could go. The bridle lady was so excited to see Jillian. She told us that we could use Vaseline under the bridle and tube so they dont irritate her face. She also showed me a way that might work to clean it. We then packed up our things that made our next appointment for June. That feels like such a long time from now, lol.
Jillian and I then made a quick stop to exchange something at the mall and then headed to Kenosha to see my parents. Brent and some friends went to go see Iron Man in Milwaukee so Jillian and I went and hung out with my parents and went to Red Lobster and Babies R Us. We had our first experence at dinner with someone stairing at her for awkward amounts of time. I am find with people looking and asking questions but awkwardly looking at her most of the meal is a little frustrating.

Saturday:
On Saturday we worked! We are trying to get our house ready for my in-law's anniversary party and there is a lot to do in a little amount of time. Luckily Dan, Seth, my parents and Brian and Lauren came out and helped us out. I'm so thankful to all of them for giving of their time and energy! We would not get it done without them! For dinner we headed into Kenosha and had pizza and hung out.

Sunday:
This morning started off with Jillian's 10ml of water and meds. She only took about 5ml of it. She then proceeded  to puke it 4 times over the next 2 hours. She also pooped when I was getting her dressed and she had bloody mucus in her poop. There was not a ton there but enough for me to notice. I figured I would watch it. I then dressed Jillian in the dress she was to wear for Easter (but was too big for her).
 Our church does a baby dedications for infants and today we dedicated Jillian to be raised up in the Lord. It was a nice service and a lot of our family joined us for the event!  After church we all went out to HuHot for lunch and Jillian slept most of the time (just what she needed after the excitement). We then stopped at the Dollar Store and Kwick Trip and headed to my parents to pack up and head out.
On our way home we went to a benefit for my second cousin. He has CF and needs a double lung transplant. They are currently raising money for the operation and had a great benefit today for him. Jillian and I showed our support with our I <3 a tubby shirts today. It was also nice to catch up with the family. While we were there we took Jillian's temp since she was feeling warm and not acting like herself. Her temp came back fine.
Once we got home Jillian and daddy had some cuddle time. She was fussy but she got her 2 hours off of the pump. Brent gave her a bottle of water and then handed her to me. She then proceeded to puke and poop at the same time giving back most of the water she just drank. She has made the noise like she was going to puke many times today but there has been nothing in the tummy so nothing has come up. Brent then came back in the room and took her to change her diaper while I cleaned up from the puke. She had pooped blood again. I called her pediatrician's office and they paged the oncall dr (who she has never seen). He called back about 25min later and asked if she was eating normal (yea, she has no choice) and said to call her dr in the morning. So now we wait til morning. You play a constant balancing act being a mom of is this something big or do I wait it out and you are always trying to figure out if the choice you made was the correct one. We will see how the night goes. If she keeps pooping blood or puking or becomes inconsolable we might need to head to Children's. Not a trip I want to make, or a decision that we take lightly of going up there but if it is what we need to do then we will.
So now it is time for kind of bed... the kind of night sleep you get when you are worrying about your kid.