Wednesday, May 1, 2013

Its MAY!

Jillian is LOVING the warm weather. Every time we go outside she smiles so big. I need to find her some shorts, because most of what she owns in her current size is pants because no one thought she would be this size in the summer. She has one pair in her current size and 2 in the next size up, and for my sweaty girl that wont be enough. She has always been such a warm child... she gets that from her daddy, not me.
This morning on the way to work Jillian had a large choking episode. She had only had her acid reflux so far today. She choked for quite a while. She has had a few smaller choking episodes today too. We tired 1 bottle with her at dinner and at first she was playing with it for me so Brent tried but then she started refluxing and choking so we stopped it.  
Med supply delivered meds to my work today. Ordering them online did not work so I called them yesterday. They brought me a months supply today. I was so excited to get 30 days instead of 15 so we dont have to work that out as often. 
Jillian had a doctor's appointment today with her pediatrician. She was at 13lb 7.5oz. She is up to the 20th percentile!!! This weight also means that either the other doctor's scale was off or she gained 6oz in 2 days and then only 1.5oz in 5...hmmm. The doctor said her ear looks fine we just need to finish out the coarse of antibiotics. She said that overall Jillian looks a lot healthier then before and I agreed with her. Since getting the NJ she is a much happier child and I'm so grateful! The doctor also apologized for not having more answers for me and I told her that I was not expecting a ton from her (not in a bad way, she is doing her job of taking care of the everyday things and leaving the rest to specialists). She is a great doctor and really watches out for Jillian but she is right in what she said today, that currently we have more questions then answers. As sad as this is my confidence in the medical field is not all that high some days. I was sick for many months when I was younger and I learned that they are not the end all be all. To a degree I feel sad for people who put all of their faith in the medical field because when they come up short they are crushed. Do I hope for answers? yes. Am I so thankful for all of the hard work all of our doctors are doing and will continue to do? yes. But I get that life is a process and so is figuring things out sometimes. Jillian is our little puzzle, but I stump doctors myself sometimes so she is like her mommy.
She is still pooping a lot and it is back to newborn like poop. She pooped 3 times today and 1 was a blow out. We will see what GI has to say about it on Friday. 
Her doctor works in two different locations and I was reminded today why the one drives me crazy. Every time I have worked with them it has been a pain and I have been frustrated. Jillian needs to go in for shots every other week and one office is 5 minutes from our house and the other is 30minutes. To get a shot she only needs to see a nurse. I am off on Tuesdays so it is best for her to get a shot on Tuesday so I can spend the day with her. Until now I have always driven to the office 30 minutes away but I was hoping to not have to. I went to set up her next shot appointment today and they told me at that location I can only bring her for shots when the doctor is in, which is Wednesday afternoons. I dont want to take off of work to get her a shot when I have the day before off. I was informed that I could call the other location and see what they would do. I was annoyed. I know the other location will set up a Tuesday appointment but it is the time and gas to drive all that way for one shot. I also needed to set up Jillian's 6 month dr appointment and they acted like I was a huge inconvenience for asking for a morning appointment because I am working in the afternoons this summer. By the time I was done setting up the appointment I just wanted out of there. I love Jillian's doctor but the office staff can be a lot to handle some days. I guess from now on I will just stick with the other office even though it is farther away.
After the doctor Jillian and I went to Target to look for more lids for her bottles. Since we are using her bottles as storage containers right now more then something to feed her with it would be handy to have more of the lids for them. Sadly  our Target does not carry the lids anymore so my mom is going to look in Kenosha for me. As we were checking out of Target the girl ringing us up looked at Jillian in the stroller and panicked that there was something up Jillian's nose. She thought Jillian put it up there. I explained to her that it was a feeding tube and she looked at me like I was crazy and why would I do that to my child. She then had a hard time finishing checking us out. I felt bad for her that she seamed so uncomfortable with it.
Once Brent got home from work we decided that it was so nice we wanted to spend time outside. We went to Lake Geneva and had dinner outside and then walked by the lake. It was so nice out and Jillian loved it. She was so full of smiles! I think we will be spending a lot of time outside this summer.
Once we got home Jillian fell asleep quickly. All of the fresh air must have worn her out!

No comments:

Post a Comment