Then we drove over to Knotts Berry Farm for a couple of hours. The kids hung out in the Camp Snoopy area and Seth, Brent, Mikaly and I rode a roller coaster and the log ride.
They set up a special meet and greet for Jilli with Snoopy where Snoopy gave her a stuffed Snoopy. It was really sweet.
There were not a ton of ride that the kids could do and most of the roller coasters we wanted to ride were not operational that day so we were only there a couple of hours.
We decided that since this whole park was made because of fried chicken that we needed to try to fried chicken which became a comedy because we did the chicken to go and decided to eat it at the picnic area of the park... but they did not give us silverware and none of the other places around had silverware we could use so we ended up eating mashed potatoes with coffee stir sticks. We laughed the whole meal... its one of those things I think we will talk about for a long time.
We headed back to the hotel to swim for a little while and Lydia napped. Seth and Mikaley headed to meet her cousin for dinner and the rest of us headed into Downtown Disney to eat dinner and shop. We went back to the hotel and the boys picked up ice cream to come back to the room and we went to bed.
We had a couple of rough spots in the day:
-At breakfast they noticed that Jilli was a special guest... so they tried to bring latex balloons to our table as a gift for her. I have a very very bad latex allergy and before they were all the way set down on our table we asked for them to be taken away. They were trying to be sweet and do something kind for my girl and I felt bad that we had to ask very quickly for the balloons to be brought far away from us but just that short experience made my day longer. I was hoping that I would be alright since it was such a short exposure however as time passed more and more of my body was reacting and I had to take benadryll. I felt off the rest of the day and had to re dose again in the evening and head back to the hotel earlier. It stinks but isn't anyones fault. My latex allergy is just rough and its a reminder to everyone who spends time around me how really careful we need to be.
-Jilli's wish was to swim in the monorail pool at the Disneyland Hotel. The Monorail pool is under construction until May and Star Wars land opens in May at Disneyland and they are expecting the park to be a capacity which sounds horrible so we decided that going now and missing the monorail pool was the best choice. The hotel does have a normal pool (the monorail one has water slides) so we took Jilli to that. She was doing great splashing around while people held her and I held her oxygen. She was in the pool maybe 15 minutes and her oxygen overheated (we were standing in the sun) so we pulled her out of the pool but she very quickly turned blue... this is different then cold turning colors... this was her body became very lethargic and her lips were blue and her entire body coloring changed... I ran her upstairs where Lydia was napping and switched oxygen concentrators and bumped Jilli up to 2lpm and Brent took the not working concentrator apart. Thankfully after a few minutes we were able to get the broken one working again (we have been trying to get a new one to replace this one since December but insurance and waver issues have caused so many delays and we are still waiting...) It took Jilli a half hour before her coloring started to come back and she could sit up on her own and then she was slower moving the rest of the day. It was really scary. I just want to yell at NIH... this is what happens when she isn't on oxygen!!!
| Mickey shaped food... my favorite food shape |
| I love all the old memorabilia |
| This was one weird show... any when the show ended they played Micheal Jackson... apparently they did not get the memo |
| Hand style lunch |
| Looking at the pool in her new swim suit and swim wrap |
| Jilli after the pool |
| Dinner... we got three creative personal pizza and split them |
| Jilli hiding her Tiny Super mission at Downtown Disney |
| I want this tile in my house |































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