Brown and Pink Polka Dots : The life around poop!

You know your a mom when your big goal of Wednesday was to take a shower and the closest I got was being peed on my 3 year old...

So Tuesday morning I got up and got everything ready to start wrapping Jillian's diapers. I went upstairs to start the process (Jilli was sleeping) and found her bed soaked in poop and pee. Like arms and back covered big mess. I woke her up so I could get her changed and cleaned up and the first thing she did was rub her eye with her poopy hand. Lets start this off by saying im fine with puke, ok with blood... I still struggle somedays with poop. I got her all cleaned up and put the plastic wrap diaper on her. She HATED it, and I don't blame her. I had an ob appointment and then we headed to Target. I needed to pick up meds. I also picked up a reusable swim diaper since that does not have the chemicals and fibers of a disposable diaper I figured we would give that a try. We also bought a potty chair. Not that I think potty training is happening anytime soon, but I figured hopefully I could get her to chill on that for a while and maybe catch poop in that. We went home and she sat on the potty chair for a while and played iPad. She wanted to get up so we put the swim diaper on. She peed in the swim diaper (for the test the poop can not touch pee) so she went back to the potty seat for a little while. She told me she wanted to get up and I told her that was fine but we had to do a plastic wrap diaper again and she decided that sitting on the potty seat was better then plastic on her butt. She sat on the potty until her foot fell asleep, which she had never experienced before so that was upsetting to her. After her morning poop in her bed we did not see any more poop on Tuesday. It was rather a long day for both Jilli and I.

Wednesday morning she got up and sat on the potty seat again for a while and then we put the swim diaper back on. She peed in the swim diaper but did not notice until the pee was running down her leg. Brent was working from home on Wednesday and needed to run to the store during his lunch break so he picked up a second reusable swim diaper. Jilli peed on the potty at one point but had no idea that she had peed until I looked in the toilet and noticed it (this is why she is not ready for potty training, she is fine sitting on the potty but she honestly still does not know most of the time if she has peed or not or if she has to go, the past few days has really enforced that. If she wants to sit on the potty and try, more power to her, but I am not going to push it as her body is not ready and it is cruel to expect her to do something her body is not ready for, she most likely will not be in diapers forever, this is just going at her pace) Wednesday we did not see any poop at all. We did have to use the plastic wrapped diapers a few times and she would just cry when we put them on her. For a kid who has a lot of medical stuff go one in their life and takes most of it with a smile its really hard to see her get this upset over it.

Thursday morning we got up and needed to head to Children's for her pulmonology appointment. They are doing work on the parking garage again and parking was a disaster! The problem with a 10:45 appointment is that most people are still in from morning appointments so the garage is really full at that time. Valet was so full it was hard to get to the parking garage and there was not even a place to leave your car for valet if you wanted to so we headed into the garage and it took 20min to get a parking spot! The roof was even full! We headed to pulmonology. The nurse came in and we talked for a little bit and then I went to put Jilli on the exam table before the doctor came in and noticed that she had peed all over the place and was dripping. The doctor walked in to me attempting to clean up the mess. The doctor and I talked for a little bit. I explained that I am not expecting Jillian to start running all over the place and having the typical energy of a 3 year old, that is unrealistic, but at the same time it is not normal for her to sit and look at a wall for long periods of time and tell me she is too tired to sit up and play with toys. The doctor agreed with me. Since bumping her up to 3/4lpm her energy level has started to go back up which I am really grateful for. The doctor said to leave her at 3/4lpm for a while and during the summer when everything is stable and her other areas are looking ok to try to go back to the 1/2lpm and then we will know based on how she does with that what flow rate she needs when multiple areas are not having issues at the same time. We talked about her Sunday afternoon and the doctor agrees that it was an allergic reaction. For now we are keeping our follow up appointment that we already had for October but if other things come up then we will go back sooner.
On the way home we stopped at Target to pick up a prize for the class that won the coin war at school. Jilli picked out pencils. We then went to school and Jilli got to put them in the kids cubbies which made her really excited. We came home and she sat on the potty chair for a little bit. Then she wanted to go outside. She has been asking for days to play outside but I wanted to give her lungs some inside time after Sunday, but yesterday I agreed to go out partially because I knew we needed to leave the house in a short amount of time so she would not be outside for long anyhow. We got outside and she played for about 5minutes and then she pooped!!!! I brought her up to the bathtub and had her stand and I took her stuff off. I got all of the stuff out that the poop needed to go into and started scooping the poop into the different containers. Just writing that is making me gag! Brent got home and I yelled for him to come help. While I was playing poop scientist he worked on cleaning her up which was a hot mess at this point because poop had run down her legs. I got everything where it needed to go and Brent got her cleaned up and then it was time to leave for dinner.
Brent's grandpa is in town and every time he is up we always go to dinner at Cracker Barrel with him and my parents and brother. Brent and I have been looking at different special baby dolls to get for Jillian as a gift when her sister comes and we walked in last night to Cracker Barrel and they had a bunch of the stuff for their baby doll line on clearance 70% off! The dolls were all full price but we were able to get her a doll, ballet set for the doll, carrying case and play kitchen for less then it was going to cost for just a Bitty Baby. I am really excited because Jilli and Brent's grandma always use to look at these dolls together so it means even more that we got one of them for her. I am also excited to have one more thing checked off my list of things to get done before the baby comes. Dinner with grandpa was really nice. It is always great to see him and he and Jilli enjoyed playing the peg game at the table together (Jillian's rules of how to play lol)
So this morning Brent left the house with two of the poop tests in a cooler. The third test needs three different poop samples so it is not finished yet, but it feels good to have two of the tests done. He stopped at Children's on his way to work and dropped them off with the lab. Hopeful she poops twice today so we can finish the other test up! I think everyone here is ready to put the plastic wrap back in the drawer (I literally have been carrying a box of plastic wrap and stuff for poop samples in the diaper bag with me this week!) Yesterday the pulmonologist and I agreed that she does not have c-diff, which is one of the things that they are testing her poop for. I had c-diff in collage and there is no way with c-diff you would go a day without pooping. I am thankful she does not have c-dif, that is not something I would wish on anyone and it took a long time to get rid of it when I had it and it was very painful. So we will see what the poop samples come back to say. We are still waiting for all of her blood work to come back too. I also have not heard anything more from genetics this week, or about our referral to endocrine. If I don't hear anything by Monday from endocrine I will call her ped's office because normally when they put a referral in I get a call within a weekish time.

So here is to hoping for more poop today!

This is what I walked into Tuesday morning

If you are going to plastic wrap a diaper might as well make it festive right!?

I figured I should test out our new car seat so I know how to put it in. I wanted a car seat that was easy to install and I don't think it could be much easier then this. I will probably blog about the car seat at somepoint because I am rather impressed with it!