Yesterday morning I called GI and they had a couple ideas for us:
1. Up her laxative from 3-4ml 2x daily to 7ml 2x daily (Thursday and Friday we had given her 5ml 2x a day)
2. Give her a suppository daily until we see good poop
3. Consider upping her CoQ10 if the first two don't work in the first two days
So yesterday Jilli and I went to Target to get suppositories, a cheep shower curtain and shaving cream. We came home and I tried to give her the suppository but it was not working with one person and thankfully Brent got home and together we were able to get it in. We then put her on the shower curtain that was taped to the floor and gave her shaving cream to play with on the shower curtain. It did not take too long before the rumbling started. She pooped but only the amount of one days worth.
While she played with shaving cream I called Children's billing because genetics sent me a message that they could not do the pre-auth for the re-run of her exome sequencing because the system only had her state insurance listed and not her primary. I called billing and they said they had no idea what genetics was talking about because on their end they could see both, so then I contacted genetics again. While I was taking care of that Jilli decided to roll in the shaving cream so then I took her up for a bath.
My cousin Jake came over to work on our lawn mower and hang out. I was not feeling well last night (contractions and trying not to get sick all over the place) so it was a low key night. Jilli cuddled on the couch with Brent and I and started complaining of being hot. She was overheating again... it was not like fever overheating, its different. After a little bit we got her to cool off.
Yesterday as the day went on she started having more energy then what we have been seeing. It was really nice to see my 3 year old play with her toys! I think the up in oxygen is helping her.
This morning we gave her 7ml of laxatives. By 1pm she still had not pooped any more so it was time to give her another laxative. Brent helped me give it to her before he left for his brother's graduation. Jilli kept telling us "no more butt medicine." Yesterday she though the idea of medicine that went into her butt was funny but today after having gone through it yesterday she no longer found it funny. After she just hugged me and said that she was upset because she told me no and I did it anyhow. I explained to her that mommy had to do it to help her and that I never do anything to hurt her but sometimes some things we have to do hurts. It crushed my heart.
She then grabbed onto my neck and held on and started saying that it hurt. It took a lot of pushing and was painful for her to get the poop out. I felt really bad for her. She just held onto me and said she needed me. She pushed about two days worth of poop out. It once again had a good amount of black chunks in it and was the consistency of water.
Since pooping she has been laying down. I asked her if she wanted to watch a movie while she rested and she said yes. She is cuddling next to me with a blanket while I type this.
This morning she had good energy and stamina for her! She helped to clean up her toys and she helped me get some toys ready for her sister. Brent and I assembled the new Mamaroo this morning (thank you to my mommy and daddy!). We are a month away from having a baby so we are really trying to get things done and make sure everything is ready! This morning I worked on cleaning the living room and getting different things put away.
I am hopeful for more poop still. I am hoping the black chunks stop and that whatever is causing them stops. It looks like Monday morning I will be calling GI to figure that out. I am thankful that the oxygen looks to be helping. Her pulse ox is looking better too! We just keep chugging along here!
| Jilli at the dentist on Thursday |
| Jilli resting |
| Hanging out! |
| Ok we are a little goofy sometimes! |
| Brent building the Mamaroo |
| I think we might have a few toy stethoscopes! This is not even all of them, just the ones she has hanging on the gate! |
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