Thankful

I have not been feeling great the last couple of days... I think it is the crazy Wisconsin spring we are having... my allergies are just not liking it. I have spent more time just hanging out the past few days. In fact Jilli and I have not left the house since Monday. But this has given me time to reflect on some things in my life that I am really thankful for.

On Tuesday I sent Jillian's ped a message asking her opinion for what we should do about vaccinations for the baby.  Jillian has really bad, odd reactions to vaccines and has only gotten some of them because we had to stop them for medical reasons (like she would start struggling to breath and we would have to rush her to the ER). From the start we had Jillian on a modified vaccine schedule because I have reactions to vaccines (I am allergic to eggs and latex and almost all vaccines are made in those) so I wanted to be careful with Jillian and vaccines. I was really struggling with what to do with this baby and vaccines. I am not against vaccines, I just wanted to be careful since there are now two of us that react to them. Our ped called me yesterday and we were able to have a really good conversation about what the best plan for vaccines for this little one is (we are not going to start them until after she is 2mo old and then we are only going to do 2 at a time spread a month apart). I am so grateful for our ped! I am thankful that she would take time out of her busy day to help me figure out what is best for my kid who is not even born yet. She has been so helpful with Jillian and all of her stuff. She has always supported our choices and helped to refer us to the right people. She is a great doctor and I am really thankful for her.

I am also really thankful for my hubby! I gotta take a second to brag! He has been AMAZING this pregnancy. I am so thankful for how hard he works to provide a home for us. He has not given me any crap about lack of real meals around here most nights and if I am not feeling great he takes care of the cooking. I am so grateful for him!

Today I am thankful for a cuddly little girl. Yesterday she was very much 3 and pushing her limits. Monday she was rather sassy (she was yelling at people for looking at her at therapy) but thankfully today has been much better and she is making a lot better choices. We played a board game together, played with her sticker book and did a 60 piece puzzle together. Now as I am typing this she is curled up next to me playing Sesame Street on her iPad. She is at that age where she is trying to figure out where limits are, and that is just a part of development, but after a few days of her really pushing it is nice to have a calm day where she is acting more like herself.

I am also thankful for our pharmacy. When you have a kid on as many meds as Jilli is you get rather friendly with the pharmacy staff. They really care about my kid! There was a couple of issues yesterday with her meds and they worked really hard to fix it for us and I am really grateful. We had been with a different pharmacy when Jillian was younger and when there was problems they would just tell me it was mine to deal with, but our current pharmacy does all that they can to fix it for me and that means a ton to me.

I am also thankful for our med supply company today. For some reason the past couple of months I have had a hard time remembering to call them to order Jillian's tube feeding supplies. I need to call them on the first Tuesday of the month for them to deliver with her oxygen. Her oxygen is set up to weekly automatic delivery every Thursday. I set a reminder on my phone to call this week and then silenced it and forgot to call until last night at 6pm! I figured that would mean that they would not be able to deliver feeding tube supplies until Friday, meaning we would have to miss library time and that I would have to sit at home two days in a row waiting on med supply, but I knew it was my fault. On many occasions med supply has made me want to pull my hair out (forget to deliver oxygen, bring smashed cans of formula, bring empty oxygen tanks, drop off broken pumps, ect) but this time they really came through. I was shocked when the guy came to deliver oxygen today and he had all of her feeding tube supplies with him. I am so grateful!

Even when I'm not feeling great, there is still a lot to be thankful for!

Jilli picking out tubes to make Tubie Friends

Jilli wanted to help put the tube in the Tubie Friend! She loves helping to make them. She was so excited that one of the ones we made today needed oxygen like her

Jilli had to get her Tubie Friend to help make Tubie Friends for other kids. We also talked about the differences between G tubes and GJ tubes!

On Tuesday Jilli was SO excited to go with us to vote. You could tell she was excited because she was talking so loudly in the line... I kind of felt bad, but at the same time I think she was the most excited person in the room to be there voting. She was also so excited that they gave her a voting sticker.