Sickness update

My mom and I were talking on Friday night how I always feel like we are minutes away from a sickness at our house. In reality we are, having a kid who gets sick a lot changes your way of thinking. All plans are tentative, thats just the way it is.

Jilli needed nebs this weekend but inbetween nebs she did pretty good. She had a gunky nose but most of the weekend she just kept going. Monday she slept in a little and we went to therapy where she worked really hard. We came home and Brent was home early because he was not feeling great. He and I both had the same thing just 24 hours apart. It was just the feeling you get right before you get sick, where your body just feels icky but nothing specifically is wrong. It lasted for 8 hours for each of us and then we were fine. Monday Jilli needed 3 nebs during the day but had times of playing so I figured we were probably on the back end of whatever she had going on.
Tuesday morning at 2:30 Brent and I both woke up to the sound of barking. This was the worst cough she has had in a long time. She was struggling to catch her breath. We started her neb and turned on oxygen for her. We also turned up the humidifier. I listened to her lungs and the lobes sounded alright, I could not pinpoint a spot of pneumonia. Brent and I debated bring her to the ER. We are not parents who run our kid someplace just because of a runny nose, we had been doing neb treatments for 3 days and had just been handling it by ourselves, however she was really rough at that point. We decided to give the neb time to work as I sat next to her bed watching her breathe. Around 3:30 (half hour neb, they take about a half hour to fully kick in) she started to fall back to sleep and her breathing started to settle. Around 4am she woke up coughing again but it lasted less then 5 minutes.
Around 8am I went to go to the bathroom and as I was walking up the stairs I could hear her wheezing from the hallway so I went in and woke her up and started a neb.
My mom came over as she is on spring break. We had plans that she was going to go to my OB appointment with Jilli and I and then we had stuff planned for the afternoon, however with the night we had we decided it was best for mom to stay at the house with Jillian while I went to my OB appointment. I had my blood sugar test that morning too and was not to have any coffee before the test so that just added to the morning. The blood sugar test went fine, I got a head ache from it but I did not feel as sick as I did when I took it with Jilli. My doctor and I had a good conversation about "this" and what it means for delivery which was really good.
Jilli spent most of the morning just sitting and rather lethargic. I called to get her into the nurse practitioner (her ped does not work on Tue) and they said her schedule was full. I asked them to send a message to the nurse practitioner about what was going on with Jillian and then I got a phone call a little while later saying the nurse practitioners would squeeze us in. I am so grateful for the nurse practitioner. She knows Jillian and keeps up with her case. She also knows that when I am calling and saying we need to be seen that I have tried all of the first steps already.
Mom and I took Jilli in. She did not have a fever and her pulse ox looked good (she was on oxygen). She listened to her lungs and said that you could tell that the nebs are doing what they need to do and to just keep doing them as often as needed (we were doing them every 4 hours at this point). She said she thought whatever this illness is was at its climax and to just keep doing what we are doing but that if she starts getting worse, develops a fever, or is not off nebs by Friday to come back in.
She played more in the afternoon/evening then she had in the morning. Still mainly sitting and coloring or playing board games but at least she was not just sitting on the couch.
We gave her a neb last night right before she went to sleep and she made it through the night without needing a neb. I woke up to her breathing a little funny once but it only lasted about a minute and then she was back to breathing better. It is a little after 8am now and she is still sleeping. Our plan for today was to take her to a children's museum but it looks like we are going to scale our plans back and look for something to do closer to home that takes less energy. Life is all about adapting!
I am really grateful for my mom coming over yesterday and hanging out. She was such a big help and I really appreciate it! I was running on little sleep and the joys of the sugar filled drink so it was nice to have an extra set of hands here to help out. I'm thankful for Brent too. He called me in the afternoon and told me not to worry about dinner, he would take care of picking something up on his way home, which I really appreciated.

Sleepy girl doing a ned

Coloring while doing a neb in the afternoon