Monday, February 8, 2016

Feeding Tube Awareness Week 2016- Day 2

Today's topic:
Post your story or pictures of you or your child thriving with energy as a result of tube feeding. Or, post before and after pictures to show how much tube feeding has improved you or your child's energy.


Wow, there are so many ways that Jillian's tube has improved her energy. Before Jillian's tube she barely had the energy to eat. I would nurse her and then give her a bottle of breast milk so she could get easy calories in because it was just too much work for her to eat. Then once we would get the calories in her, most of the food would come back out. This led to a very unhappy baby. Without a feeding tube Jillian was not gaining weight. We even tried adding formula to breast milk to make it higher in calories, but that just got puked out too. When you don't get enough calories in you get very tired and cranky. 

Jillian's feeding tube has made it so she is able to grow and do the things she wants to do. It also makes it so she does not have pneumonia all of the time. She already struggles with her lungs but breathing is even harder when your lungs are being filled with food. 

Here is some pictures of Jillian just getting to be Jillian because of her tube:

Being goofy with mommy!

Doing yoga

Playing with her toys

Getting excited about being a big sister (she talks about her little sister every day! She kept telling us this weekend all of the things she wanted to take her sister to do in the Dells)

Playing basketball

Coloring (Jillian is very good at entertaining herself while we eat!)

Playing at chilren's museums

Decorating for Christmas

Playing at the playground

learning how to climb the stairs

playing with friends

Playing games

Being a princess

Riding her tricycle

Driving her car

Going to the park

Participating in zoo class

Going mini golfing
  Too many people think that having a feeding tube is no way to have a life... I challenge that thinking, having a feeding tube has given Jillian the opportunity to have a very full life!  

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