Healing

Today has been a lot slower pace then yesterday.

Jilli woke up around 9:00pm last night and was not happy about the pain in her leg. We gave her some Tylonal and then she was happier. She did not fall back to sleep until 11:00pm (she had slept from 5-9pm) She then slept through the night... I however, my mommy instinct kicked in and I woke up every half-hour to hour to check on her, honestly I would not have it any other way, I would rather make sure she is safe. 
When she woke up this morning there was pee everywhere... she was on IVs most of the day yesterday and when they discharged her we hooked her back up to her feeding pump. She did not pee from the time she was in surgery until she went to bed last night, so that means all of yesterdays pee came out overnight... fun! I got her cleaned up and we started our day which has mainly consisted of hanging out in the living room.
My mom called me this morning and offered to run to Walgreens for me since Jillian's other med was ready. She was also super kind and brought me a sandwich and coffee from Starbucks which was supper appreciated. She hung out with us for most of the afternoon and played four different sit down games with Jilli and played princesses. We also watched a few of Jilli's favorite shows. Jilli mainly sat and held her leg in an odd bent position that must have been comfortable. She tried to take a couple of steps but it was really hard.
After my mom left Annette came over with a yummy homemade dinner for us. I am so thankful for her generosity!
Tonight we have just been hanging out. She wanted to sit on the floor and play little people for a bit. She would play for a few minutes and then lay on the floor for a while. She took a couple of steps and was rather wobbly and then went back to sitting. A minute ago she was laying on the floor and started to whine. I asked her what was wrong and she wanted to be picked up and moved to the couch, where she is now happily playing iPad.

I did get neuro called today and they said GI has to put in a formal referral before they will schedule an appointment for us so I contacted GI to get that. I got a dinner reservation for a restaurant that I have wanted to eat at for years at Disney but could not get into so I am really excited for that. It is a character meal with Mickey so Jilli is going to be well entertained while we eat.
We also started Jilli's new med schedule today. I am going to have to order more syringes!

I want to send a HUGE thank you out to everyone who has sent text messages, called or sent facebook massages. They have meant a lot to us and we REALLY appreciate them. THANK YOU!

Our plan is to have a low key weekend and hope for more healing for Jilli's leg. 

cuddling with daddy after work

playing her princess game with grandma (yes that mark on her leg is where the muscle biopsy was, its about 1/3 the length of her thigh)

Her new morning med routine. She does meds 3 times a day, but morning by far is the most