For the past year-ish we have been working off and on with Birth to 3. When we started with them last year they said that they would come see Jillian once every 3 months. After one visit I decided to unenroll her because at that rate of infrequency she is taking up more resources then serivces she was getting.
We re-enrolled a few months ago because Jillian was over one and did not have any words yet. They did a reassessment and said they would come to do therapy once a month. Jillian was not showing progress.
At Jillian's 18mo check up her doctor expressed that she would like to try someplace else for Jillian's therapy.
She made a referral to New Berlin Therapies for speech, OT and PT.
So far we have had the speech eval (we are doing the PT eval on Monday). Here are the testing results:
Receptive Language: Using the PLSS-5 Jillian received a raw score of 18. The standard score (average) is 77. This puts her in the 6th percentile.
Expressive Language: Using the PLS-5 Jillian received a raw score of 21. The standard score (average) is 85. That puts her at the 16th percentile.
Jillian is going to start speech therapy once a week for 45min each time. We will see what the PT eval shows.
Jilli has been getting more frustrated lately with the delays that she has. She wants to be able to communicate with us more. We have been seeing more screaming when she can't explain to us when she wants. Sadly she is also currently in a holding pattern with learning more signs. We have been teaching her more however she has not been retaining them and is struggling with using the signs she already has.
Some of her struggles right now can be attributed to tummy stuff. We switched her from Elecare to Elecare Jr formula about a month ago and it is really hard on her body when switching foods. (this has happened when we started fortifying her breast milk, when we switched from breast milk to Elecare...) Her body just does not make the switch well and it takes a while (months) for her body to adjust. During the adjustment she gets really constipated, has a lot of gas, and a lot of noticeable pain. We needed to make the switch to Elecare Jr because it has a different mixture of nutrients then infant Elecare and since she is getting older she needs different things. Her body will eventually adjust and level out again. We have been in the process of bumping up her rate from 56ml/hr to 61ml/hr, however we are stuck at 58ml/hr right now. I am not sure why I thought we could switch formulas and bump up her rate at the same time. Her tummy is too uncomfortable to bump her any more per hour. We will wait to bump her up any more until things have evened out. Some days we are leaving her on for a little while longer so she gets a little closer to the same total volume as running at a rate of 61ml/hr.
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