Thursday, July 24, 2014

A few updates around here... with more to come...

Well I feel like the last few weeks have been a crazy roller coaster!Here is just a little bit of what is going on at our house right now:

Jillian:
We have started to see a little bit of poop. It is still not were it should be especially after 2 suppositories and A LOT of laxatives. Her belly is softer and she is not as crabby so thankfully it is starting to work. Hopefully she will fully unclog soon. Her GI system overall has not been in a good place lately. The ebb and flow of her GI system is starting to become more and more normal for us... it is what it is... unpredictable! It is our job to help her manage the difficulties of it as best as possible.
We are in full swing of doing new therapies. Jilli seams to really like speech. We have speech homework that we are working on every day. Her speech path is thinking that Jillian has a speech motor planning disorder. She said that she is a little young to make that full diagnosis however that looks to be the treatment path we are on. Jilli does not seam to be as keen about PT. I think it is because it is physically really hard for her. For speech she is able to sit. For PT she has to move. They called this week about doing the OT eval. We are still working on finding the right time for that.
Her skills are about the same. Words come and go. Right now she is liking to make elephant sounds. She is walking more but still struggling with walking. She walks like she has had a stroke. She really struggles with moving her left leg and shows lower muscle tone on that side. She does well working around it by finding things that she can hold onto to help her walk. She is getting good at adapting for her needs.
She LOVES to read books and visit the zoo. She likes to play the human body app on mommy's iPad and to put coins in her bank. She is loving her new stroller and even fell asleep in it while I ran this week. She likes to color and will color with both hands at once. She is such a JOY in our lives.

Brent:
Brent is starting a new job on Monday! This is a hug opportunity for our family. It is closer to home, with better pay and good insurance and hopefully less stress. Brent is really excited for this opportunity. We are very grateful for this opportunity and it is a huge answer to prayer!

Dan:
Dan is getting ready to move out :( His new job is in Milwaukee so he is getting ready to move to an apartment in the Milwaukee area. It is going to be strange not having him live here. I know Jilli will miss him. Tonight we asked Jilli if she was ready to go home from Target (she was signing more... wanting more Target as we were leaving). She shook her head no. We ask her if she wanted to go home to see uncle Dan and she shook her head yes.

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