B to 3 eval- PT

Yesterday Jillian really seamed like she had turned the corner. Her respiratory rate was in normal range and her pulse ox was 95. We were able to space out her nebs a little over 6 hours. She got into things which for a toddler means they are feeling better. She had a neb last night right before we put her to bed. When I got up at 2am she seamed to be doing well.
I got up a little before 9am (I dont know the last time I slept that late) to a little girl who was having a hard time catching her breath and had a respiratory rate over 60 again. I ran her to the living room and started a neb.
Over the day her respiratory rate has only gone as low as the mid 40s. It has been up in the 60s several times today. She is back to getting nebs every 4 hours. Her pulse ox is in the low 90s (if anyone knows a good ped pulse ox meter I would love to talk...). Her temp has gone between normal and 99.7. She is sitting on the edge of needing to be seen again. I HATE the gray zone. Child decide, do you need to be seen or not. 
The one difference with today over Sunday is that she is awake more. Sunday she slept most of the day. Today she is awake but not doing much. She has played a few times but play time has only lasted for a few minutes at a time. Most of the day she has sat and looked at books, laid on my chest or she sat in a chair and watched a half hour long movie without moving (that never happens). She is just chill. So not like our little girl.
I have been able to get a lot of lesson planning done today. I guess that is one good thing of being pinned to a couch by a little girl. I guess the laundry that I wanted to get done will just have to wait...

Watching a movie with her lamb

Today she had her birth to 3 PT eval. Jillian perked up when the therapist was here (she just had a neb an hour before and had a nap). She showed her how she pulled up on things. The PT said that Jillian sits on the edge of things. By 15mo 90% of kids are walking. Jillian is not. By 15mo MOST kids have several words. Jillian babbles but has no words. She said that if nothing has changed again in 2 months then they will step in and do a bunch of therapy however as of right now she is not far enough behind for them to do much. She qualifies for birth to 3 because of all of her medical needs however that does not mean they will come out much to do therapy. We are still just hoping she catches up. We will see. If not, in 2 months they will jump in full force. Until then we help her the best we can at home. I guess it is a good thing I have a degree in special ed. I never realized how much I would use it. I was laughing today as I did an Ages and Stages eval on Jillian. Most people would not know what Ages and Stages is but it is something you do a lot with a special ed degree so to me it was just normal. When you do a questioner like that though you can really start to see the gap that is forming in multiple areas. However, she still does GREAT in the logic area. She is such a smart little girl.

So for now I will cuddle with her and observe her to see what we need to do. If she needs help again then we will get that for her.