A little tummy juice with that

Jillian's tummy has been moving SLOWLY the past few days. This is causing more reflux to a kid who has a rash and you can tell overall does not feel 100%. She is handling all of this better then many other kids her age would. 

Tonight she took about 1/2 of her 15ml before she refused to drink more. She took the first 1/2 fine but then she was done. 

Tonight I picked her up and noticed her leg was wet. I then noticed her g port was open. I closed it quick realizing that it was gastric pressure that most likely popped it open. Then I sat down on the couch and something felt wet. I looked at the pillows under me and realized they were soaked. Her stomach contents were on the pillow (ie that bottle she just had mixed with stomach acid... Yummy!) I took the pillows and tossed them in the washer. I guess her tummy just could not handle that bottle tonight. 

Her rash is looking better. It is not gone but better. It still fluctuates throughout the day but it does not start out nearly as bad at this point. Hopefully sometime soon it will leave. 

Her diaper rash is looking better too. Still not all gone but looking soooo much better. I think it is close to leaving. 

We will see what tomorrow brings. Today she and daddy stayed home because neither of them felt good. Hopefully tomorrow is better for them both. 

Ps: I want to make a big shout out to some people who have held our hands and our hearts. Jillian has an amazing fan club and we truly thank the people who stand beside her and us. We were watching how I met your mother tonight and they were talking about the fear of when you have kids you loose your friends but for us it has just brought our true friends (and family) closer. Thank you!