Friday, September 21, 2018

We made it to Friday

Ever have Fridays were you just want to give yourself a cookie for making it through the week?

We had a great weekend. On Saturday we participated in the Run/Walk and had an amazing day with friends! It is one of our favorite events of the year. We also almost reached our goal!!!! We raised $2,916!!! Thank you to everyone who helped!!!

Sunday we had a calmer day. I took a bunch of pictures of Jillian looking so big in one of her kindergarten dresses.

Monday morning Jillian woke up and started to cough her classic heading downhill cough. We started the emergency plan immediately with nebs and steroids. Jilli spent the day on the couch and we would convince her to sit up for periods of time. She barely peed all day but she has just enough output that we did not need to head to the hospital.

Tuesday was much of the same. We were living hour by hour. We debated all day if it was time to head to the ER yet.

Wednesday Jilli did better at PT and Speech then we thought she would but she only made it half of her normal time.

Wednesday night Lydia's allergies started to become an issue and all night long you could hear mucus running down her throat all night and she kept choking on it.

Thursday all of the steroids hit Jilli and she spent much of the day crying and very upset. You can normally rationalize with her and nothing worked. She was getting mad about things that did not even make sense. Lydia did not feel great either. It was a long day.

Today they both needed nebs however Jilli was able to complete her school work for the day. We did school on Thursday but it took hours and so many tears.

Brent and I are both running on little sleep with two kids cough through the night and nebs for days but we have made it and the girls are showing signs of improvement today.

This time of year is historically hard for Jillian. She often does not feel good and is sometimes hospitalized around this time of year. Thankfully this year we were barely able to squeek by out of the hospital and rode this out at home with lots of med.

This week we also got the windshield finished. They came last week to fix it but then they broke the new windshield in the process of putting it on so they came back yesterday to fix it. We also caught two mice!!! Finally. We have had traps all over the house for weeks and so many messes that we have cleaned and we finally got them!!!!  

Here is to continued improvement!


Friday morning nebs


One of our friends from the chw foundation who helped us get air in the stroller tires










Jilli and her friend Grace





Team Jilli and Lydia












Jilli and cheese playing Playmobil


Jilli love Uno!













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