My big girl

I'm really frustrated tonight and just want to jump up and down and yell about how unfair a situation is and how I feel like I keep praying for guidance in a situation and all I am getting is a maze which led to another unplanned clinic visit today that left us with less answers.

So instead of jumping up and down and yelling I am going to choose to refocus at this moment because yelling isn't going to get me anywhere right now, I've contacted the people I need to that are involved in the situation and just need to wait until tomorrow before any more can be done...

So....

tonight I am going to brag about my big girl!


I am so proud of  her. I am so proud of how she works at things.


Sunday morning she woke up and her bed was wet from sweat and pee. This is common in our house... we should buy stock in character sheets... so while I was getting Lydia ready for church Jillian decided to take care of the situation for herself. She took the wet sheets off and figured out how to put a new protective cover on and a fitted sheet which is not easy because she has a Comfy Lift bed which is a specialized bed that is not flat. She worked so hard and figured it out.

She also has been working hard at changing her own diaper if it only has pee in it. She doesn't feel when she pees so I remind her every few hours to change her diaper and she takes care of changing it. She is also working on getting her leg braces on by herself and then I help her get her shoes on.

I am so proud of how she is working for independence. It is not that these tasks are easy for her but she has self determination to try her best.

Next week she starts kindergarten. That just seems crazy but she is so excited. I think I am ready. I have been busy lesson planning and getting things together and she has started working on setting her self motivated goals for the school year.

Kindergarten feels like a huge milestone in her life. I am sure I will be a mess on Tuesday but I am so proud of her.

She has also been working hard in speech since she started. It is not easy for her but she is trying so hard. This week we are working on trying a few iPAd apps to help with times when she can not talk. Hopefully we find one that works for her.

My big girl is growing up! She says such grown up things now. She has also started telling us all of the time that we are the best. That girl knows how to encourage people in ways I have not seen before. It is a gift of hers.

So there is my brag for the night!

We are still raising money for the Children's Hospital Run/walk. You only have a couple more weeks to donate and we are way behind on our goal. Click HERE to donate. This money goes to services that directly impact the girls and so many kiddos we love.

She decided to wear a crown to lunch the other day

Jilli in her made bed

Jilli tonight... she played a toy guitar to sing a goodnight song to her American Girl doll. It was the sweetest thing. She said before she could go to bed she needed to be a good momma and put her doll to bed. It was sweet