I started the morning with a call from our caseworker with the state and she said she called around and could not figure out what was going on with our paperwork so she said to get the paperwork to her and she would personally fax it to the disability office to make sure it gets to the right person. My mom is going to bring it up there on Monday for me so hopefully then this is taken care of and they are able to process her paperwork.
We decided to fix Brent's car. In talking with some friends and family we decided that was the best choice. We did the work that needed to be done now to drive it home and then are going to check on prices for the rest of the work. Being an adult is "fun"!
Today my parents and I took the girls to a children's museum. This is a tradition for us that we see how many children's museums we can got to while my mom is off for the summer. This summer is so much easier with the trial wheelchair because it means that Jilli is able to play longer. Each day I check the mailbox just hoping the approval letter is in there. Jilli's best friend got her wheelchair today. At first Jilli was excited to see the picture and then got sad that she didn't have her new wheelchair and we had a conversation about how sometimes we are happy for others while sad about our own circumstances and that is ok but we should congratulate the person who had the happy thing. Thats a good life lesson. We are very excited for Caroline and her new wheelchair.
I also got a call from our pharmacist today because last night I asked him if they have heard yet about Jilli's new neb med (that we have been fighting insurance for since Jilli's hospitalization in April) They called the state today and the state was confused and said we needed to fax them all of the info again. Ugh! Thankfully the pharmacy did that for me. This is crazy. The wasted man hours on insurance stupid mistakes. Our private insurance messes up equally to the state.
Lydia is officially taking a step without holding onto something. We are excited. You can tell she wants to take more so badly but it will come with time, one step is a start. Next week we pick up her braces which should help too because part of why she falls is because her foot goes sideways. I don't think she is to like the braces but I hope they help. She also says the work "up" sometimes and is working to say "mom" she has stopped saying "yea" like she was. She is doing well in the comfy lift bed in the crib.
Time to head to bed. Tomorrow we have several house projects to work on including hopefully finishing the landing for our deck and taking care of the tree branch.
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| Lydia liked the vet area at the museum with the stuffed dog |
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| RMH gave Lydia a new doll |
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