So as I sat there curled up with my babies last night all I could think about are my wishes.
I wish we had a congress that worked together
I wish people didn't look for selfish gains
I wish people actually care about others
I wish people did what was right not based on sides
I wish people didn't make backroom deals
I wish people worked for greater good
Yes all of those wishes have to do with Washington this week. The things people are saying is hurtful. The lack of logic is astounding (if you were born you benefited from maternity care if you are a boy or a girl... and if you are pro life and view life as starting at conception why would you block them getting medical care? Looks to me like your pro life stance is only for your words but actually having to do something is taking it too far). I have never been a huge Paul Ryan fan but was rather indifferent about him but mark my word as of today I will NEVER vote for him (yes I do actually live in his district, that is not an uninformed threat) And the "Freedom Caucus" you, oh you. I can't even watch you on the news anymore because it is not fair to my blood pressure. I have written a lot about healthcare these past several months and have read so so much more. I am having another piece published in Complex Child's April edition about healthcare. I understand ACA is not perfect, but I also understand it protects kids like mine. I would say call your congressman but if yours are like the ones in Wisconsin they are either not answering, not writing back or complaining that people are contacting them. So be vocal to those around you (respectfully) and yes still reach out to your congress person if even only for your own piece of mind. Stripping the 10 essentials would be horrible! Now don't take this as I am thrilled with the Dems either. Right now we be the perfect time for them to come out and say that they hear people's frustrations with ACA and provide suggestions to improve it.
So what are some positives going on in our world?
-We were gifted a portable oxygen concentrator which will be so helpful for Disney and for day to day. Pulmonology approved us using it at the 1lpm setting so we are good to go!
-Today is Brent's last day at his current job. Monday he starts a new job. This was not something he went out looking for but this company came looking for him and we are hopeful that it is a good fit. There has been a lot of prayer and consulting others about this choice but we are both at peace with it and feel like it is the best direction for our family.
-This weekend we are having friends come over. Jilli is so excited. It will be the norm around here... all children have feeding tubes lol! We are thankful for our special needs family that walks with us!
-Lydia has learned how to crawl! She is into everything she can!
-Jillian's trial wheelchair (they still have not ordered hers) should be dropped off at therapy on Monday!
-Our fast passes are all made for Disney which means we are less then 60 days away! I am so excited!
-Jilli has been determined to learn how to add and has been doing rather well at it! That girl puts her mind to something and she tries her best
-From now until we go to Disney Jilli is working on watching a Disney movie each night before she goes to bed. She is having fun with it.
-Our new van is working great and I am so thankful for it
-Lydia's baby dedication at church is scheduled for April
-Several people have signed up to help serve dinner at RMH!!!
-We found Frozen sandals at Payless this week that fit over Jilli's leg braces. We might have done a happy dance in the store!
I am trying to focus on the positives while still fighting and being informed about healthcare. It is not easy. There is a part of my brain at a war for knowledge over sanity so I am trying to balance.
No comments:
Post a Comment