Jillian's overall score on the Peabody went up and she is now in the 10th percentile!!!! For a child who started out around the 4th percentile (around 20mo old), 10th is a huge improvement (yes I understand percentiles, I am a special ed teacher, I know 10 in reality would have most people upset but we are being positive here). We were also able to tweak some of her goals. She works so hard and I am so proud of her. Today her body started giving out and even when she could not walk anymore she crawled to finish the task she was doing. She is a rockstar!
Otherwise things around here are same old, same old. We are trying to get some organizing done around the house which means at the moment there is just crap all over the place! I have been working on putting away and organizing laundry for Jillian and myself. I HATE putting away laundry. Frankly I would rather clean the toilet! I find it boring (Jillian and I try to incorporate dance parties into laundry folding) and like it takes forever. It is one of those tasks were frequently my ADD gets the best of me and it ends up half done with a mess left over. Since I am reaching a point where my "normal" clothes are not really fitting anymore (I have really "popped" in the last few days) I needed to do some closet rearranging which also prompted working on cleaning out closets of things I never wear (I am normally really bad about getting rid of clothes that don't fit, I just hold onto stuff in case I might wear it again...) and getting rid of clothes that I have not fit into since before I got pregnant with Jillian (I went from a size 14 before Jillian to a size 4-6 after so I had an entire wardrobe that no longer fits, the weight loss was a mix of a ton of puking while pregnant followed up with taking care of a sick kid). I also went through Jillian's clothes and she is now officially wearing more 18mo clothes then 12mo!!! Pants are still really hard fit on her and she pretty much exclusively wears Carters because most 18mo pants from other places are wide and short (however a lot of Carter's 18mo onsies still come to her knees, but in some of their t-shirts I have had to go larger to get over her tube). Little miss has her own shape... she is such a girl!
Last week Jillian got to go with me to my OB appointment. I told her she would get to hear the baby's heart beat and she was all afraid that it was going to be too loud and hurt her ears (this is the child who plays her i-Pad on mute 99% of the time, even when watching movies). My OB decided that she wants a 3D ultrasound for this baby because of all of Jillian's stuff. Not that Jillian's 20 week ultrasound showed anything (not to say it was not a traumatic experience, they thought her one leg was misformed and a lot of people were running in and out of the room only to figure out they measured wrong...) but they just want to be a little more cautious this time around which I appreciate. We also did the quad screen and that came back normal. I really don't expect any prenatal tests to tell us anything in relation to if this child will have the same thing as Jilli, and frankly even if this child has the same "thing" we might not know at birth or for some time. It has been 3 years of watching things develop with Jillian so only time will tell, my only big hope is that if this child has what Jillian has that we get some things in line faster then we did with Jillian (like feeding tube and oxygen before both of those problems get as bad as Jillian was before we were able to get her the help she needed). I am thankfully starting to be able to eat more which is really nice, I really felt like I had the stomach flu from October through December. Some days are still rough... I laid in bed last night just praying to keep everything in but it is not as bad as before. The complete and udder exhaustion is not as bad either, before just the thought of running to the store made me tired but I have gotten out a little bit more. The hard part is that I see other people who are pregnant and able to just keep going with life and I feel really bad that it hits me so hard and I feel rather useless while pregnant. I don't like using it as an excuse, I am not that type of person so its a pain when I can't do things because it is just really hard work for my body to grow a baby and I just have to accept that it is only 9mo and the people around me love me enough to understand. I do what I can when I can and when I can't I try to remind myself that we all need times of rest in life and maybe God is using this time in mine to make me slow down a little more.
As I am writing this I am loving listening to little miss play in her play area. Truly one of the best ideas was rearranging our main floor and gating her play area off. The toy mess stresses me out less when it is all contained in one area. I make her clean it all up every couple of days (she has to put one thing away before getting something else large out) but it is not a big deal if she wants all of the little people stuff out for a while because it is not in the middle of my living room. Little miss is also convinced she is Aurora today because she is wearing pink (a pink hoodie and sweat pants cause its cold!)
Funny story of the day... I was dishing out Jillian's meds this morning and she walked into the kitchen and asked me in a very preteen voice if I had any friends! I informed her that yes I do infact have friends (this is not the first time she has asked or insinuated that I don't have friends... thank you child!) I then asked her if she has any friends. She said yea, I asked her who. She stood there with a pondering look and then told me all about her friend Caroline and how they play together. Then she went on to tell me about her friend Jolie and how she wants Jolie to come over. It was sweet listening to her talk about her friends. She also talks about how her therapists are her friends.
So thats life around here right now!
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| Her was making "formula" and dishing it out with a syringe. Brent's grandma bought this for Jillian before she died and grandpa saved it and gave it to Jillian for Christmas. It makes me smile and think of grandma |
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| cuddling in bed. She thinks biting her toes is funny |
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| This bird flew into our sliding glass door on Thursday. Jillian named it "little red bird" I thought for sure it was dead |
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| until it got up and walked away. It took it about an hour and a half from crash to walking so during that time Jillian was very interested in the bird and what it was going. She wanted me to put it in my van and drive it to the dr and then to its daddy. She also wanted me to feed it a snack of chicken... |
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| Baby bump! I am not huge on bump pictures, I dont have many of them from Jilli but I try to take one every once and a while |
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| Afternoon cuddles after therapy today. Monday afternoons are low key here after therapy |
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