Genetics

I feel spent today, and honestly on the verge of tears. Most days I just keep going and do what I need to do. Most days I am hopeful and positive about it all. Today is just hard.

Madison Children's genetics called today, they cant get us in until the end of January. I know that is better then what Milwaukee can do right now, but right now that seams forever away! They did put us on a cancellation list, so we are trying to be hopeful that we are able to get in quicker but I am sure there are many people ahead of us in line on the cancellation list.

It feels like we are in a season of waiting, and waiting is hard! I know God has a plan and timing but right now I kind of want to throw a temper tantrum.

I don't know what to do. I don't even know what to ask the doctors to do next. We have always had a next plan for testing but right now I don't even know what to ask for.

I know this feeling will pass, just today feels overwhelming!

We are still waiting to hear from Madison neuro. We will see when they can get us in. I am hopeful that it is sooner.

I am also really nervous about going to a different hospital. It feels like starting at a new school mid year. I know where everything is in Milwaukee. I know how things work. I have never been to Madison Children's before. I know we will figure it out, but is feels scary.

Today I am very thankful that we were able to go to Disney last week. It was a much needed time to recharge before this. I just keep remembering all the fun things we got to do and daydreaming of when we get to go again at some point.

I know, one foot in front of the other, with time this will just feel like a short bit of time, but today it feels overwhelming.