Yesterday she just seamed off in the morning, but then in the afternoon she took a long nap and then when Jaime and Jason came over for dinner she was happy to play with her uncle Jason. So by the time she went to bed I just figured she had an off morning and thought nothing more of it.
And then I woke up to that cough this morning... once you have had a child that has had croup multiple time you know the cough... that croup cough definitely has its own sound. I got up and gave her a neb.
Today is the second to last day of school... so i needed to go to work. Brent has lots going on at work right now so he needed to go to work. Jillian did not have a fever so she could to school. She ha another neb at school. She spent most of the time just sitting. This is one of the reasons that I am not teaching next school year (tomorrow is my last day of work) it is really hard when she wakes up sick like this and she wakes up sick like this a lot more frequently then other children.
I got her a 11:30 appointment with the nurse practitioner. My mom and grandparents met me there as they were headed back from Milwaukee.
Jillian's stats looked good. The nurse practitioner said you could tell Jilli just did not feel well. She said her lungs sounded ok then but croup is much worse in the night/morning so her lungs sounded like she expected in the afternoon, especially an hour and a half after a neb. The one thing we all noticed was how shaky and unstable Jillian was. Nebs either make Jilli hyper or don't effect her behavior at all, I have never seen her body react the way it was today. It is hard to describe but we all noticed it and were a little concerned by it.
The NP said to do nebs as needed and to expect tonight to be rough. She said she would have her nurse call me this afternoon to check to see how Jilli was doing.
Her nurse did call me this afternoon (follow up means SO much to me and I really appreciate it when an dr office calls when they say they will). She said to keep doing what we are doing. When we were in the office I forgot to ask the NP about if she thinks we should use oxygen tonight with Jillian since nights are harder with croup. I asked the nurse when she called me and she said to keep her on oxygen tonight if she is having a hard time breathing and has a croup cough tonight. She told us to use our best judgement about it.
I called yesterday to check on Jillian's sleep study. The person I talked to said that they give parent's the number to call them because it happens that no one calls with results (the way she said it made it sound like they frequently don't call with results... I'm not ok with that...) She told me she would look on the computer... then she said the computer had nothing in it. She then said she would go look for Jillian's results. She then came back on and said that Jillian's file must be in someone's office because she could not find it so someone would call me back today... I was really unsure about my feelings about that conversation. By 4:15 I had not heard from anyone so I called and left them a message... its now just about 6pm and I still have not heard from anyone and I wont hear anything until at least tomorrow now. I was not getting frustrated about this before, but now I am starting to. We are talking about a sleep study for a child on oxygen! Ok rant over!
So tomorrow is my last day of work. That still has not sunk in yet. I had to leave work a little early to get Jillian to the doctor so today was a weird day. Tomorrow my co-worker and I are throwing a carnival for our students and their parents... ie crazy day! I think once that is done it will hit me, but today was a reminder that of why I need to stay home.
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